Child Development and Rehabilitation Center, Oregon Health and Science University, Portland, OR, USA.
J Dev Behav Pediatr. 2012 Jan;33(1):84-6. doi: 10.1097/DBP.0b013e31823ff33e.
: Alex is a 9-year-old boy brought to you, his primary care provider, for a "fifth opinion." You have cared for Alex since he was adopted from a Romanian orphanage at 3 years of age. He has been physically healthy with normal growth parameters and no evidence of fetal alcohol syndrome. Alex has long-standing history of social difficulties, impulsivity, lying, controlling, manipulative behaviors, violent outbursts at home with subsequent lack of remorse, and excessive chatter. You referred Alex to an interdisciplinary child development clinic 2 years ago, where he was diagnosed with reactive attachment disorder (RAD) and attention deficit hyperactivity disorder (ADHD). He was noted to have normal cognitive and language skills. Attachment therapy, stimulant therapy, and school accommodations for ADHD were recommended.Alex received some individual counseling with the school psychologist for a year after the first evaluation, with little improvement in core behaviors. The following year, Alex established care with a psychiatrist and a private counselor. The psychiatrist prescribed a succession of stimulants, each of which worked for only a short time and then had waning effect. The counselor worked with Alex and his parents on managing Alex's behavior, which the family reports has been somewhat helpful.Alex's parents express great frustration and sadness that parenting Alex has been such an ongoing struggle since he was adopted. They note that Alex is superficially friendly, chatty, and charming, with everyone he encounters, including strangers, but he never progresses past such superficial interaction, even with his adoptive parents. The parents express that they are deeply wounded that Alex is not more loving and is not more appreciative of the fact that they rescued him from the orphanage.His parents asked his pediatric clinician about Autism as they observe Alex's lack of real affection and social connection with parents or peers. They also note that Alex has difficulty verbalizing his feelings and that he lies frequently, chatters tangentially, and he can watch the Discovery channel for hours. A neurologist, to whom Alex was referred to evaluate staring spells, reassured the family that the spells did not seem to be epilepsy and also diagnosed Alex with "Asperger's syndrome." The school psychologist, after 2 years of equivocation, recently made Alex eligible for autism spectrum services.During the interview and examination, Alex is funny, friendly, and a bit silly. He uses normal eye contact, seems to enjoy the neuromotor examination, and is eager to show you his cool, new handshake. He engages in easy banter, using normal vernacular and prosody. After the visit, you call the therapist to express your opinion that the RAD diagnosis is valid after all and to ask whether the family is engaged in attachment therapy. The therapist refutes the RAD diagnosis, endorsing Asperger's syndrome (AS) instead and notes that Alex is making good progress in school and in therapy, where he is learning pragmatic skills and basic social skills with the use of social stories.Where do you head next?
亚历克斯是一个 9 岁的男孩,由他的初级保健医生带你来就诊,这是他的“第五次就诊”。你从他 3 岁时从罗马尼亚孤儿院收养他以来一直照顾他。他身体健康,生长参数正常,没有胎儿酒精综合征的证据。亚历克斯长期以来一直存在社交困难、冲动、撒谎、控制欲强、操纵行为、在家中爆发暴力行为,随后缺乏悔恨,以及过度喋喋不休。你在两年前将他转介到一个跨学科儿童发展诊所,在那里他被诊断患有反应性依恋障碍(RAD)和注意缺陷多动障碍(ADHD)。他的认知和语言技能正常。建议他接受依恋治疗、兴奋剂治疗和 ADHD 的学校适应治疗。
亚历克斯在第一次评估后接受了一年的学校心理学家的个别心理咨询,但核心行为几乎没有改善。第二年,亚历克斯与一名精神科医生和一名私人顾问建立了治疗关系。精神科医生开了一系列兴奋剂,但每种兴奋剂都只起很短的作用,然后效果逐渐减弱。顾问与亚历克斯和他的父母一起管理他的行为,据家人报告,这在一定程度上有所帮助。
亚历克斯的父母非常沮丧和难过,因为自从他被收养以来,照顾他一直是一个持续的挑战。他们注意到,亚历克斯表面上很友好、健谈、迷人,对他遇到的每个人,包括陌生人,都是如此,但他从未超越过这种表面上的互动,甚至对他的养父母也是如此。父母表示,他们深感受伤的是,亚历克斯不够爱他们,也不感激他们把他从孤儿院救出来。
他的父母询问他的儿科医生关于自闭症的问题,因为他们观察到亚历克斯缺乏与父母或同龄人的真正感情和社交联系。他们还注意到,亚历克斯很难表达自己的感受,而且他经常撒谎、漫无边际地闲聊,他可以连续几个小时观看探索频道。一位神经科医生,亚历克斯曾被转介去评估凝视发作,他向家人保证这些发作似乎不是癫痫发作,同时还诊断亚历克斯患有“阿斯伯格综合征”。学校心理学家在两年的犹豫不决后,最近使亚历克斯有资格接受自闭症谱系服务。
在面试和检查期间,亚历克斯风趣、友好、有点傻气。他使用正常的眼神交流,似乎很享受神经运动检查,并且渴望向你展示他很酷的新握手。他轻松地闲聊,使用正常的白话和韵律。访问结束后,你打电话给治疗师,表达你的意见,即 RAD 诊断毕竟是有效的,并询问家庭是否正在接受依恋治疗。治疗师反驳了 RAD 诊断,支持阿斯伯格综合征(AS),并指出亚历克斯在学校和治疗中都取得了良好的进步,他正在使用社交故事学习实用技能和基本社交技能。
你接下来要去哪里?