St. George's Hospital, Blackshaw Road, London SW17 OQT, UK.
Early Hum Dev. 2012 Feb;88(2):79-82. doi: 10.1016/j.earlhumdev.2011.12.002. Epub 2012 Jan 9.
The decision to withdraw life support challenges health care professionals and parents. Parents need to fulfil their role as parents, part of which involves difficult decision making. They desire to fully understand the care of their infant in order to help in this process. Parents work to a different time frame than health care professionals and therefore require detailed information and support to make decisions. Available approaches to care need to address ethical decisions regarding treatment, pain and suffering, quality of life and decisions to move from active to palliative care. Communication requires an investment of time, repeated discussions and a compassionate approach by health care professionals to educate parents in order for them to make an informed decision. Follow-on care to help parents come to terms with the decisions they have made is a requirement of good practice.
决定撤掉生命支持会对医疗保健专业人员和家长构成挑战。家长需要履行其作为父母的角色，其中包括做出艰难的决策。他们希望充分了解婴儿的护理情况，以便在这个过程中提供帮助。家长的工作时间与医疗保健专业人员不同，因此需要详细的信息和支持来做出决策。现有的护理方法需要解决有关治疗、痛苦和苦难、生活质量以及从积极治疗转为姑息治疗的决策方面的伦理问题。沟通需要医疗保健专业人员投入时间、反复讨论，并采取富有同情心的方法，以便向家长进行教育，从而让他们做出知情决策。后续护理可以帮助家长接受他们所做的决定，这是良好实践的要求。
