Ward Jared A, Vig Katherine W L, Firestone Allen R, Mercado Ana, da Fonseca Marcio, Johnston William
Cleft Palate Craniofac J. 2013 Mar;50(2):174-81. doi: 10.1597/11-055. Epub 2012 Jan 11.
Objectives : To determine the impact of orofacial clefts on the oral health-related quality of life of affected children and whether the oral health-related quality of life of children with orofacial clefts differs among different age groups. To assess whether the responses of children with orofacial clefts differ from the caregivers' perceptions of their child's oral health-related quality of life and compare with data from a control group. Design : Cross-sectional study. Patients/Setting : A total of 75 subjects with cleft lip and/or cleft palate (mean age, 13.0 years) from the Nationwide Children's Hospital Craniofacial Anomalies Clinic, as well as their caregivers, and 75 control subjects (mean age, 13.9 years). Main Outcome Measure : Self-reported oral health-related quality of life measured with the Child Oral Health Impact Profile, a reliable and valid questionnaire designed for use with children and teenagers. Results : Children with orofacial clefts had statistically significant lower quality of life scores than control subjects had for overall oral health-related quality of life, Functional Well-being, and Social Emotional Well-being. There was a statistically significant difference in the interaction of age group and Social-Emotional Well-being between children with orofacial clefts and control children. No statistically significant differences were found between the responses of children with orofacial clefts and their caregivers' reports. Conclusions : Presence of an orofacial cleft significantly decreases overall oral health-related quality of life, Functional Well-being, and Social-Emotional Well-being in children and adolescents. The negative impact of orofacial clefts on Social-Emotional Well-being is greater in 15- to 18-year-olds than in younger age groups. Children with orofacial clefts and their caregivers had very similar evaluations of the child's oral health-related quality of life.
确定口面部裂隙对受影响儿童口腔健康相关生活质量的影响，以及不同年龄组口面部裂隙儿童的口腔健康相关生活质量是否存在差异。评估口面部裂隙儿童的回答与照顾者对其孩子口腔健康相关生活质量的认知是否不同，并与对照组数据进行比较。
横断面研究。
患者/研究环境：来自全国儿童医院颅面畸形诊所的75名头/腭裂患者（平均年龄13.0岁）及其照顾者，以及75名对照受试者（平均年龄13.9岁）。
使用儿童口腔健康影响量表自我报告口腔健康相关生活质量，该量表是一种可靠且有效的问卷，专为儿童和青少年设计。
口面部裂隙儿童在总体口腔健康相关生活质量、功能幸福感和社会情感幸福感方面的生活质量得分在统计学上显著低于对照受试者。口面部裂隙儿童与对照儿童在年龄组与社会情感幸福感的交互作用方面存在统计学上的显著差异。口面部裂隙儿童的回答与其照顾者的报告之间未发现统计学上的显著差异。
口面部裂隙的存在显著降低了儿童和青少年的总体口腔健康相关生活质量、功能幸福感和社会情感幸福感。口面部裂隙对15至18岁儿童社会情感幸福感的负面影响大于较年轻年龄组。口面部裂隙儿童及其照顾者对孩子口腔健康相关生活质量的评价非常相似。
