School of Social Work, Ariel University Center of Samaria, Ariel, Israel.
J Psychosoc Oncol. 2012;30(1):21-40. doi: 10.1080/07347332.2011.633977.
The authors explored 12 couples' coping with their children's diagnosis and treatment of retinoblastoma using a semistructured interview, with qualitative, descriptive, narrative-interpretative analysis. Findings showed that the parents' experienced increased distress with the physician's first suspicion that something was seriously wrong. Distress was ameliorated when they arrived at a specialty treatment center but increased as they tackled treatment decisions. Distress decreased again after they consented to enucleation but increased after hospital discharge. The parents' strength, their ability together and individually, to separate and split between cognition and emotion contributed to coping. Parents need support from a multidisciplinary staff and parents who coped with retinoblastoma.
作者使用半结构化访谈，对 12 对夫妇在其子女接受视网膜母细胞瘤的诊断和治疗过程中的应对方式进行了研究，采用的是定性、描述性、叙事解释性分析。结果表明，当父母从医生那里首次怀疑孩子的病情严重时，他们感到的痛苦就会增加。当他们到达专门的治疗中心时，痛苦会减轻，但当他们不得不做出治疗决定时，痛苦又会增加。在他们同意眼球摘除后，痛苦又会再次减轻，但在出院后又会增加。父母的力量，他们一起和分别在认知和情感之间分离和分割的能力，有助于应对。父母需要来自多学科团队和应对过视网膜母细胞瘤的父母的支持。
