利益相关者对澳大利亚风湿病协会数据库（ARAD）的满意度。

Stakeholder Satisfaction with the Australian Rheumatology Association Database (ARAD).

机构信息

1 Monash Department of Clinical Epidemiology, Cabrini Hospital, Malvern, Victoria, Australia 2 Department of Epidemiology and Preventive Medicine, Monash University, Melbourne, Victoria, Australia 3 School of Physiotherapy, Curtin University of Technology, Perth, Western Australia, Australia 4 Institute of Bone and Joint Research, University of Sydney, Sydney, New South Wales, Australia 5 Department of Rheumatology, Royal North Shore Hospital, St Leonards, New South Wales, Australia 6 Department of Rheumatology, St George Hospital, Kogarah, New South Wales, Australia 7 Faculty of Medicine, University of New South Wales, Sydney, New South Wales, Australia 8 General Medical Unit, Royal Melbourne Hospital, Melbourne, Victoria, Australia 9 Royal Women's Hospital, Melbourne, Victoria, Australia.

出版信息

Patient. 2009 Mar 1;2(1):61-8. doi: 10.2165/01312067-200902010-00007.

DOI:10.2165/01312067-200902010-00007

PMID:22273060

Abstract

BACKGROUND

The Australian Rheumatology Association Database (ARAD) is a voluntary national registry for monitoring the long-term benefits and safety of biological disease-modifying anti-rheumatic drugs (bDMARDs) for inflammatory arthritis. Both rheumatologists and patients contribute data to the ARAD.

OBJECTIVE

To evaluate the satisfaction of patients and rheumatologists with the ARAD.

METHODS

Cross-sectional surveys were distributed to a random sample of 100 community-dwelling ARAD patients in 2007 and to rheumatologists attending the 2007 Australian Rheumatology Association (ARA) annual scientific meeting.Survey questions included items about the usefulness of the ARAD, workload for participants, frequency of questionnaires, and experience of contact with ARAD staff.

RESULTS

A total of 92.5% of patients perceived the ARAD as very important (scoring 9-10 on a numeric rating scale). Patients reported minimal difficulty in completing questionnaires, and 95.0% indicated that a 6-month interval between questionnaires was reasonable. Of responding rheumatologists, 32.3%, 62.1%, and 53.8% indicated that the ARAD was very important (scoring 8-10) with respect to clinical information, research, and the profession, respectively, while 68% of those participating in the ARAD reported that the workload required to enroll patients was manageable and 30% found it difficult or onerous.

CONCLUSION

Key stakeholders in the ARAD view it as an important resource and are satisfied with its operations. Efforts will be directed towards assisting those rheumatologists who find the associated workload difficult and to improving the perceived clinical value of information available from the ARAD.

摘要

背景

澳大利亚风湿病协会数据库（ARAD）是一个自愿的全国性登记处，用于监测生物改善病情的抗风湿药物（bDMARDs）治疗炎症性关节炎的长期疗效和安全性。风湿病医生和患者都为 ARAD 提供数据。

目的

评估患者和风湿病医生对 ARAD 的满意度。

方法

2007 年，对随机抽取的 100 名居住在社区的 ARAD 患者和参加 2007 年澳大利亚风湿病协会（ARA）年会的风湿病医生进行横断面调查。调查问卷的问题包括 ARAD 的有用性、参与者的工作量、问卷的频率以及与 ARAD 工作人员的接触经验等。

结果

共有 92.5%的患者认为 ARAD 非常重要（数字评分量表评分为 9-10）。患者报告完成问卷几乎没有困难，95.0%的患者认为每 6 个月进行一次问卷调查是合理的。参与调查的风湿病医生中，32.3%、62.1%和 53.8%分别表示 ARAD 在临床信息、研究和专业方面非常重要（评分 8-10），而 68%的参与 ARAD 的医生报告说，招募患者所需的工作量是可以管理的，30%的医生认为工作量困难或繁重。