Department of Radiation Oncology, Dana-Farber Cancer Institute, Boston, MA 02215, USA.
Leuk Lymphoma. 2012 Aug;53(8):1474-80. doi: 10.3109/10428194.2012.660629. Epub 2012 Mar 1.
Using a questionnaire study, we compared the employment and insurance of Hodgkin lymphoma (HL) survivors versus their siblings. A total of 511 survivors and 224 siblings completed questionnaires. HL survivors were more likely to report job denial, difficulty obtaining insurance due to medical history, and difficulty changing jobs due to fear of losing insurance. On multivariable analysis, male gender, income and scarring of the head and neck were associated with job denial. Male gender and impairment interfering with a job were associated with difficulty obtaining health insurance. Survivors with >4 physician visits in 2 years, <10years from diagnosis, or with permanent hair loss from treatment were more likely to report inability to change jobs due to fear of losing insurance. Compared to their siblings, HL survivors may face greater challenges in obtaining employment and insurance. Late effects from treatment, including permanent cosmetic changes, may contribute to these differences.
采用问卷调查研究,我们比较了霍奇金淋巴瘤(HL)幸存者及其兄弟姐妹的就业和保险情况。共有 511 名幸存者和 224 名兄弟姐妹完成了问卷调查。HL 幸存者更有可能报告工作被拒绝、因病史难以获得保险以及因担心失去保险而难以换工作。多变量分析显示,男性、收入以及头颈部瘢痕与工作被拒绝有关。男性和妨碍工作的损伤与获得健康保险困难有关。在过去 2 年内就诊次数超过 4 次、诊断后<10 年或因治疗导致永久性脱发的幸存者,更有可能因担心失去保险而无法换工作。与他们的兄弟姐妹相比,HL 幸存者在就业和保险方面可能面临更大的挑战。治疗的晚期影响,包括永久性的美容改变,可能导致了这些差异。