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一项借助技术的项目,用于支持一名肌萎缩侧索硬化症患者的休闲活动参与和交流。

A technology-aided program to support leisure engagement and communication by a man with amyotrophic lateral sclerosis.

作者信息

Lancioni Giulio E, Singh Nirbhay N, O'Reilly Mark F, Ferlisi Gabriele, Blotta Ida, Ricci Irene, Spica Antonella, Oliva Doretta

机构信息

University of Bari, Italy.

出版信息

Dev Neurorehabil. 2012;15(2):149-53. doi: 10.3109/17518423.2011.633572. Epub 2012 Feb 1.

DOI:10.3109/17518423.2011.633572
PMID:22296327
Abstract

OBJECTIVE

To assess a technology-aided programme for promoting leisure engagement and communication in a man with amyotrophic lateral sclerosis (ALS).

METHOD

The programme involved a laptop computer equipped with a Clicker 5 software package, an optic microswitch and an interface device. The participant could choose between two leisure options (i.e. songs and videos), could write requests and general messages through a virtual keyboard and a microswitch and could have the written text read out to caregivers and staff.

RESULTS

The use of the programme increased the mean frequency of words written to about 15 per 20-minute session during the second intervention phase. Those words were used by the participant for formulating a mean of over two requests/messages per session. The participant also listened to songs and watched videos.

CONCLUSION

A simple technology-aided programme may allow ALS patients to manage leisure engagement and communication.

摘要

目的

评估一项技术辅助方案,以促进一名肌萎缩侧索硬化症(ALS)患者的休闲参与和交流。

方法

该方案包括一台配备Clicker 5软件包、光学微动开关和接口设备的笔记本电脑。参与者可以在两种休闲选项(即歌曲和视频)之间进行选择,可以通过虚拟键盘和微动开关书写请求和一般信息,并且可以将书写的文本读给护理人员和工作人员听。

结果

在第二个干预阶段,该方案的使用使平均书写单词频率增加到每20分钟约15个。参与者使用这些单词平均每次会话提出超过两个请求/信息。参与者还听了歌曲并观看了视频。

结论

一个简单的技术辅助方案可能使ALS患者能够管理休闲参与和交流。

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