Department of Psychiatry and Psychotherapy, Central Institute of Mental Health, Medical Faculty Mannheim/Heidelberg University, Square J 5, 68159 Mannheim, Germany.
Neurocrit Care. 2012 Jun;16(3):456-61. doi: 10.1007/s12028-012-9677-1.
Decompressive hemicraniectomy reduces mortality after space-occupying MCA infarction. Data on the general public's opinion toward interventions that can save lives but leave the survivors impaired are lacking.
In this population-based epidemiological study in a German city, we surveyed 312 adults in a telephone interview. Here, we presented a scenario of a space-occupying MCA infarct. We evaluated probands' attitude toward decompressive surgery in general, and toward outcome scenarios according to Rankin scale (RS) definitions.
312 persons (157 women, 52 ± 20 years) were interviewed. 58 persons had difficulty comprehending the proposed scenario, most of them being of advanced age (79 ± 5 years). From the remaining 254 responders 5 (2%) persons favoured surgical intervention, 149 (58%) were undecided, and 100 (39%) were opposed to surgery. The number of individuals opting for surgery rose in scenarios with a better outcome: If very severe impairment was anticipated (RS 5), only 3 (1%) persons favored surgery. With severe (RS 4), moderate (RS3), and slight impairment (RS2) the numbers were at 16 (6%), 60 (24%), and 161 (63%), respectively. We found no association with age, sex, religion, education, self-estimated health status, or marital status.
Explaining complex medical situations to laypersons poses a major problem, particularly to those of old age. Only a minority favors life-saving medical interventions if survival is associated with deficits of unpredictable degree. The majority of persons does not favor intervention even if only moderate impairment is anticipated. Decompressive surgery may in fact be against the values of many individuals.
去骨瓣减压术可降低占位性 MCA 梗死患者的死亡率。缺乏关于公众对可以挽救生命但使幸存者受损的干预措施的看法的数据。
在德国的一项基于人群的流行病学研究中,我们通过电话采访调查了 312 名成年人。在这里,我们呈现了一个占位性 MCA 梗死的场景。我们评估了一般人群对减压手术的态度,以及根据 Rankin 量表 (RS) 定义的结果场景。
312 人(157 名女性,52±20 岁)接受了采访。58 人难以理解提出的方案,其中大多数人年龄较大(79±5 岁)。在剩下的 254 名应答者中,有 5 人(2%)赞成手术干预,149 人(58%)犹豫不决,100 人(39%)反对手术。如果预期会出现严重残疾(RS5),选择手术的人数会增加。只有 3 人(1%)赞成手术。如果预期会出现严重(RS4)、中度(RS3)和轻度残疾(RS2),则分别有 16(6%)、60(24%)和 161(63%)的人赞成手术。我们没有发现年龄、性别、宗教、教育、自我评估的健康状况或婚姻状况与手术选择之间存在关联。
向非专业人士解释复杂的医疗情况是一个主要问题,尤其是对老年人来说。只有少数人赞成在生存与不可预测程度的缺陷相关联的情况下进行挽救生命的医疗干预。即使只预期出现中度残疾,大多数人也不赞成干预。减压手术实际上可能违背了许多人的价值观。