University of Copenhagen, Department of Anthropology, Øster Farimagsgade 5, DK-1353, Copenhagen K, Denmark.
Soc Sci Med. 2012 Apr;74(7):1037-44. doi: 10.1016/j.socscimed.2011.11.044. Epub 2012 Feb 6.
This article analyses the causes of HIV stigmatisation in Burkina Faso as perceived by people living with HIV/AIDS (PLHIV) and people working in AIDS-related Community Based Organisations (CBOs). Stigmatisation continues to be a pressing issue when dealing with HIV/AIDS in Sub-Saharan Africa. The article is based on direct observation of HIV-related practices within 20 CBOs in Burkina Faso, as well as semi-structured interviews or focus group discussions with 72 PLHIV and 90 professionals and volunteers working in CBOs. PLHIV were chosen by convenience sampling among the persons who accessed CBO services and were interviewed about their life quality and experience relating to HIV. Professionals and volunteers were interviewed about their strategies, their achievements, and the problems they encountered. The research was conducted in the course of three months fieldwork between September and November 2009. Our principal findings show, firstly, that moral or social stigmatisation does not in any simple way derive from fear, ignorance or inaccurate beliefs but that it is also established and continually reinforced by official campaigns addressing HIV/AIDS. Secondly, we show that stigmatisation is a socially complex and ambiguous process. Based on these empirical findings we conclude that HIV/AIDS need no longer be approached in AIDS intervention as a sexually acquired and fatal disease. When reliable access to antiretroviral drugs is in place, AIDS becomes a chronic condition with which one can live for many years, and this makes it easier to address HIV and moral or social stigmatisation by downplaying the current focus upon sexuality and morality.
本文分析了布基纳法索艾滋病毒污名化的原因,这些原因是由艾滋病毒感染者/艾滋病患者(PLHIV)和艾滋病相关社区组织(CBO)中的工作人员所感知到的。在撒哈拉以南非洲地区,艾滋病污名化问题仍然是一个紧迫的问题。本文基于对布基纳法索 20 个 CBO 中与艾滋病毒相关的实践的直接观察,以及对 72 名 PLHIV 和 90 名在 CBO 工作的专业人员和志愿者进行的半结构化访谈或焦点小组讨论。PLHIV 是通过在那些使用 CBO 服务的人中进行方便抽样选择的,并就他们的生活质量和与 HIV 相关的经验进行了采访。专业人员和志愿者则接受了关于他们的策略、成就和遇到的问题的采访。这项研究是在 2009 年 9 月至 11 月的三个月实地工作中进行的。我们的主要发现表明,首先,道德或社会污名化并不是简单地源于恐惧、无知或不准确的信念,而是也由针对艾滋病的官方运动所建立和不断加强。其次,我们表明污名化是一个社会复杂而模糊的过程。基于这些经验发现,我们得出结论,艾滋病干预不再需要将艾滋病视为一种通过性传播和致命的疾病。当可靠地获得抗逆转录病毒药物时,艾滋病就变成了一种可以多年生存的慢性疾病,这使得更容易通过淡化当前对性和道德的关注来解决艾滋病和道德或社会污名化问题。