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长期乳腺癌幸存者对来自女性伴侣支持的看法:一项探索性研究。

Long-term breast cancer survivors' perceptions of support from female partners: an exploratory study.

作者信息

White Jubilo Tommy, Boehmer Ulrike

机构信息

Department of Community Health Sciences in School of Public Health, Boston University in Massachusetts, USA.

出版信息

Oncol Nurs Forum. 2012 Mar;39(2):210-7. doi: 10.1188/12.ONF.210-217.

Abstract

PURPOSE/OBJECTIVES: To describe the social support experiences of long-term breast cancer survivors who have female partners, from the perspective of survivors.

RESEARCH APPROACH

Descriptive study using qualitative methods.

SETTING

United States.

PARTICIPANTS

A purposive convenience sample of 15 partnered sexual minority women (SMW) (e.g., women with female partners) diagnosed with nonmetastatic breast cancer from 2000-2005.

METHODOLOGIC APPROACH

One-on-one interviews were conducted by telephone. Interviews were semistructured through the use of an interview guide. Transcribed data were coded and analyzed to identify emergent themes.

MAIN RESEARCH VARIABLES

Perceptions of support and broad aspects of the intimate partner relationship that may critically impact the psychological well-being of SMW following breast cancer.

FINDINGS

Six salient themes describe SMW survivors' perceptions of support: (a) female partners are the singular source of survivors' most valuable support; partners support survivors by (b) discussing survivors' health and distress, which survivors associate with (c) perceived partner distress, and (d) managing the home and caretaking, which survivors associate with (e) perceived partner burden; and partners support survivors by (f) sharing in a life beyond cancer.

CONCLUSIONS

Female partners play a central and comprehensive support role as well as experience ongoing stress and burden related to survivors' cancer.

INTERPRETATION

Future research and direct investigation may inform healthcare providers about caring for SMW and their families following breast cancer.

摘要

目的/目标:从幸存者的角度描述有女性伴侣的长期乳腺癌幸存者的社会支持经历。

研究方法

采用定性方法的描述性研究。

研究背景

美国。

研究对象

一个有目的的便利样本,由15名有伴侣的性少数女性(SMW)(即有女性伴侣的女性)组成,她们在2000年至2005年期间被诊断患有非转移性乳腺癌。

方法学途径

通过电话进行一对一访谈。访谈通过使用访谈指南进行半结构化。对转录的数据进行编码和分析,以确定新出现的主题。

主要研究变量

对支持的认知以及亲密伴侣关系的广泛方面,这些方面可能对乳腺癌后SMW的心理健康产生关键影响。

研究结果

六个突出主题描述了SMW幸存者对支持的认知:(a)女性伴侣是幸存者最有价值支持的唯一来源;伴侣通过(b)讨论幸存者的健康和痛苦来支持幸存者,幸存者将其与(c)感知到的伴侣痛苦联系起来,以及(d)管理家庭和照顾,幸存者将其与(e)感知到的伴侣负担联系起来;伴侣还通过(f)分享癌症之外的生活来支持幸存者。

结论

女性伴侣发挥着核心且全面的支持作用,同时也经历着与幸存者癌症相关的持续压力和负担。

解读

未来的研究和直接调查可能会让医疗保健提供者了解乳腺癌后如何照顾SMW及其家人。

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