Ullrich Philip M, Spungen Ann M, Atkinson Darryn, Bombardier Charles H, Chen Yuying, Erosa Norma A, Groer Shirley, Ottomanelli Lisa, Tulsky David S
Spinal Cord Injury and Disorders Services, Department of Veterans Affairs (VA) Puget Sound Healthcare System, 1660 S. Columbian Way, Seattle, WA 98108, USA.
J Rehabil Res Dev. 2012;49(1):155-74. doi: 10.1682/jrrd.2010.06.0108.
The importance of activities and community participation for persons with spinal cord injury (SCI) has been recognized for decades and yet theoretical and empirical advances have been limited. This report summarizes the recommendations for researchers on the topic of measuring activity and participation among persons with SCI formulated by the Spinal Cord Injury workgroup at the State-of-the-Art Conference on Outcome Measures in Rehabilitation held in January 2010. Activity and participation were defined as independent constructs ideally measured in reference to personal values and environmental influences. Measures of activity, participation, and factors influencing activity and participation are reviewed and critiqued. Gaps in available measures are described, measures in development are discussed, and suggestions for future research are made.
脊髓损伤（SCI）患者的活动及社区参与的重要性已被认可数十年，但理论和实证进展却很有限。本报告总结了脊髓损伤工作组在2010年1月举行的康复结局测量最新技术会议上就测量脊髓损伤患者活动及参与这一主题向研究人员提出的建议。活动和参与被定义为理想情况下参照个人价值观和环境影响进行测量的独立概念。对活动、参与以及影响活动和参与的因素的测量方法进行了综述和评判。阐述了现有测量方法的不足，讨论了正在开发的测量方法，并对未来研究提出了建议。
