Buchbinder Mara, Timmermans Stefan
Department of Social Medicine, University of North Carolina at Chapel Hill, Chapel Hill, NC 27599-7240, USA.
Clin Pediatr (Phila). 2012 Aug;51(8):739-44. doi: 10.1177/0009922812446011. Epub 2012 May 4.
Positive newborn screening (NBS) results cause significant parental distress, but little is known about how parents find out about children's screening results and what they are told. This qualitative, exploratory study reports on parents' perceptions of the initial communication of NBS results. Participants included the parents of 75 infants referred to a metabolic clinic in California over a 3-year period (2007-2010). Parents provided information about the initial communication of NBS results during audiotaped clinical encounters and open-ended interviews. Transcripts were analyzed inductively using thematic coding. Responses fell into 3 primary themes: sources of news delivery, providing information, and mitigation strategies. The findings suggest that health care providers have access to a range of communicative resources to buffer the impact of positive screening results that may be mobilized in future interventions. Recommendations for improving the communication process and future research directions are discussed.
新生儿筛查（NBS）结果呈阳性会给家长带来极大困扰，但对于家长如何得知孩子的筛查结果以及他们被告知的内容却知之甚少。这项定性探索性研究报告了家长对NBS结果初次沟通的看法。研究对象包括在2007年至2010年的3年期间转诊至加利福尼亚一家代谢诊所的75名婴儿的家长。家长们在录音临床会诊和开放式访谈中提供了有关NBS结果初次沟通的信息。使用主题编码对转录本进行归纳分析。回答分为3个主要主题：消息传递来源、提供信息和缓解策略。研究结果表明，医疗保健提供者可以利用一系列沟通资源来缓冲阳性筛查结果可能产生的影响，这些资源可在未来的干预措施中加以利用。文中讨论了改善沟通流程的建议和未来的研究方向。
