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影响四肢瘫痪患者上肢手术决策的问题。

Issues influencing the decision to have upper limb surgery for people with tetraplegia.

机构信息

Rehabilitation Teaching and Research Unit, University of Otago, Wellington, New Zealand.

出版信息

Spinal Cord. 2012 Nov;50(11):844-7. doi: 10.1038/sc.2012.58. Epub 2012 May 15.

DOI:10.1038/sc.2012.58
PMID:22584282
Abstract

STUDY DESIGN

Grounded theory.

OBJECTIVES

To explore to better understand the decision-making process of people with tetraplegia regarding reconstructive upper limb (UL) surgery.

SETTING

New Zealand.

METHODS

In-depth interviews with 22 people with tetraplegia, 10 of whom had UL surgery and 12 had not. Verbatim transcripts were analysed using constructivist grounded theory.

RESULTS

The primary reason for having reconstructive UL surgery was to improve independence and return to previous pastimes. Reasons not to have surgery were hope for further recovery or cure, and inadequate physical environment or social supports while rehabilitating. In addition, women identified the temporary loss of independence and need for increased care while rehabilitating as issues. Importantly, these issues were not static, often changing in importance or relevance over time.

CONCLUSIONS

The moment of making the decision for reconstructive UL surgery is elusive; therefore, multiple offers of surgery at different timeframes in an individual's life are required. In addition, flexibility in timing for surgery would allow for surgery to better coordinate with an individual's goals and priorities.

摘要

研究设计

扎根理论。

目的

深入了解四肢瘫痪者对重建上肢(UL)手术的决策过程。

地点

新西兰。

方法

对 22 名四肢瘫痪者进行深入访谈,其中 10 名接受了 UL 手术,12 名未接受。使用建构主义扎根理论对逐字记录进行分析。

结果

进行重建 UL 手术的主要原因是提高独立性并恢复以前的娱乐活动。不进行手术的原因是希望进一步康复或治愈,以及康复期间身体环境或社会支持不足。此外,女性认为康复期间暂时丧失独立性和需要增加护理是问题。重要的是,这些问题并不是静态的,随着时间的推移,其重要性或相关性经常发生变化。

结论

进行重建 UL 手术的决定时刻难以捉摸;因此,需要在个体生命的不同时间框架内多次提供手术。此外,手术时间的灵活性将使手术更好地与个人的目标和优先事项相协调。

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