Zhou Y, Zhang L, Li X, Kaljee L
Guangxi Center for Disease Control and Prevention, Nanning, China Carman and Ann Adams Department of Pediatrics Prevention Research Center, Wayne State University School of Medicine, Detroit, MI, USA.
Child Care Health Dev. 2013 Nov;39(6):816-24. doi: 10.1111/j.1365-2214.2012.01394.x. Epub 2012 Jun 8.
With the extended lifespan of people living with human immunodeficiency virus (HIV) due to the advent of antiretroviral therapy, the disclosure of HIV serostatus to their uninfected children is becoming more critical. However, limited data are available regarding parental HIV disclosure to children in China. We explore patterns of parental HIV disclosure and the reasons for disclosure or non-disclosure to children.
A preliminary study was conducted using open-ended questions in Guangxi, China in 2011 with 39 parents living with HIV.
A majority of participants (77%) had not disclosed their HIV serostatus to their children. Participants who voluntarily disclosed tended to be older and were more likely to disclose to their adult children. Among parents who disclosed, reasons included a need for emotional and financial support, as well as feelings of obligation to their children. Among non-disclosing parents, primary reasons included concerns that children were too young to understand, fear of being stigmatized, and fear of increased psychological burden to children.
Few parents with HIV disclosed their HIV status to their children. These data indicate the need for future research to explore disclosure issues in relation to children's age and the implementation of developmentally appropriate interventions and support systems for parents and children affected by HIV in China.
随着抗逆转录病毒疗法的出现，感染人类免疫缺陷病毒（HIV）的人群寿命得以延长，向其未感染的子女披露HIV血清学状态变得愈发关键。然而，关于中国父母向子女披露HIV感染状况的数据有限。我们探讨了父母向子女披露HIV感染状况的模式以及披露或不披露的原因。
2011年在中国广西对39名感染HIV的父母进行了一项使用开放式问题的初步研究。
大多数参与者（77%）未向其子女披露HIV血清学状态。自愿披露的参与者往往年龄较大，且更有可能向成年子女披露。在披露的父母中，原因包括需要情感和经济支持，以及对子女的责任感。在未披露的父母中，主要原因包括担心孩子太小无法理解、害怕被污名化以及担心给孩子增加心理负担。
很少有感染HIV的父母向其子女披露自己的HIV感染状况。这些数据表明，未来需要开展研究，探讨与儿童年龄相关的披露问题，以及为中国受HIV影响的父母和儿童实施适合其发育阶段的干预措施和支持系统。
