Kirkendall Abbie M, Waldrop Deborah, Moone Rajean P
School of Social Work, Greenspun College of Urban Affairs, University of Nevada Las Vegas, Las Vegas, Nevada 89154-5032, USA.
J Soc Work End Life Palliat Care. 2012;8(2):135-50. doi: 10.1080/15524256.2012.685440.
The number of older people with intellectual disabilities (IDs) is increasing in parallel to the lengthening life expectancy of the overall population. Little is known about the needs of older people with IDs who are at life's end. Service providers who offer direct care to people with IDs have begun to develop partnerships with hospice and palliative care specialists to provide focused care that is more specialized for their clients or residents who are approaching the end of life. However, community-based programs utilize different philosophies of care that focus on the daily management of people with IDs compared to programs that focus on care at the end of life. Merging these two approaches to care in community-based residences or community-based programs for people with IDs brings challenges for both types of programs. This article compares person-centered planning and patient-focused, family-centered care and proposes means for merging the two seemingly disparate approaches to care.
随着总体人口预期寿命的延长，患有智力障碍（ID）的老年人数量也在增加。对于处于生命末期的患有智力障碍的老年人的需求，我们知之甚少。为智力障碍者提供直接护理的服务提供者已开始与临终关怀和姑息治疗专家建立合作关系，以便为其接近生命终点的客户或居民提供更具针对性的专业护理。然而，与专注于临终护理的项目相比，基于社区的项目采用了不同的护理理念，侧重于对智力障碍者的日常管理。在基于社区的住所或针对智力障碍者的社区项目中融合这两种护理方法，给这两类项目都带来了挑战。本文比较了以个人为中心的规划与以患者为重点、以家庭为中心的护理，并提出了融合这两种看似截然不同的护理方法的途径。
