Zeytinoglu Senem, Davey Maureen P
Department of Couple and Family Therapy, Drexel University, Philadelphia, PA 19102, USA.
Fam Syst Health. 2012 Sep;30(3):265-77. doi: 10.1037/a0028961. Epub 2012 Jun 18.
In this article we describe prior cross-sectional and longitudinal research conducted with children who were born with cleft lip and/or palate and their families in the United States and internationally. The findings and clinical implications from different times and cultures are synthesized using the Biopsychosocial Model. Our primary aim is to summarize the attachment styles, cognitive, psychological and social functioning, self-concept, neurological functioning, and speech difficulties prevalent among individuals who are born with cleft lip/palate at different developmental stages (e.g., infancy, toddler, childhood, adolescence). Additionally, bystander reactions to the speech and appearance of individuals coping with cleft lip and/or palate and its effects on the family are described. Finally we examine the diversity of samples from prior clinical research and provide clinical recommendations for more collaborative family-based practice among medical and mental health providers treating families coping with cleft lip and/or palate.
在本文中，我们描述了此前在美国及国际上针对唇腭裂患儿及其家庭开展的横断面研究和纵向研究。运用生物心理社会模型综合了不同时期和文化背景下的研究结果及临床意义。我们的主要目的是总结唇腭裂患者在不同发育阶段（如婴儿期、学步期、儿童期、青少年期）普遍存在的依恋风格、认知、心理和社会功能、自我概念、神经功能以及言语困难。此外，还描述了旁观者对唇腭裂患者言语和外貌的反应及其对家庭的影响。最后，我们审视了既往临床研究样本的多样性，并为医疗和心理健康服务提供者在治疗唇腭裂患者家庭时开展更具协作性的家庭治疗实践提供临床建议。
