Department of Oro-Maxillofacial Surgery, University Hospital rechts der Isar, Technical University of Munich, Munich, Germany.
Department of Cranio- and Maxillo-facial Surgery, University Hospital Regensburg, Franz-Josef-Strauß-Allee 11, D-93053, Regensburg, Germany.
Clin Oral Investig. 2021 Sep;25(9):5421-5430. doi: 10.1007/s00784-021-03850-7. Epub 2021 Mar 4.
Nasoalveolar molding (NAM) was developed to facilitate easier treatment and better outcomes for cleft lip and palate (CLP) patients. The aim of this study was to investigate the parental burden and possible intercultural differences of this treatment modality, which is often argued to burden parents to an extraordinary amount.
Standardized questionnaires (available in English, Mandarin, and German) with 15 non-specific and 14 NAM-specific items to be retrospectively answered by Likert scales by parents of unilateral CLP patients with completed NAM treatment.
The parents of 117 patients from two treatment centers in Taiwan and Germany were included. A very high level of overall satisfaction was found in both countries with significant intercultural differences in prenatal parent information, feeding problems, dealing with 3rd party's perception, and experienced personal effort.
NAM is an effective treatment tool for children's CLP deformities and their caregivers in overcoming the feeling of helplessness. Intercultural differences may be due to infrastructural reasons, cultural attitudes and habits, or different public medical education.
In addition to facilitating easier surgical treatment, NAM can be seen as a powerful coping strategy for parents dealing with a CLP deformity of their child and does not seem to burden them extraordinarily.
鼻牙槽塑形（NAM）的发展旨在为唇腭裂（CLP）患者提供更便捷的治疗和更好的治疗效果。本研究旨在探讨这种治疗方式的父母负担及其可能存在的跨文化差异，有人认为这种治疗方式会给父母带来巨大的负担。
采用标准化问卷（提供英文、简体中文和德文版本），对已完成 NAM 治疗的单侧 CLP 患者的父母进行回顾性 Likert 量表评分，问卷包含 15 项非特定项目和 14 项 NAM 特定项目。
共纳入来自中国台湾和德国两个治疗中心的 117 例患者的家长。结果显示，两国的家长总体满意度非常高，但在产前家长信息、喂养问题、应对第三方看法以及个人感受方面存在显著的跨文化差异。
NAM 是治疗儿童 CLP 畸形及其照顾者的有效工具，可帮助他们克服无助感。跨文化差异可能归因于基础设施、文化态度和习惯，或不同的公共医疗教育。
除了有助于更轻松地进行手术治疗外，NAM 还可以被视为父母应对孩子 CLP 畸形的有力应对策略，而且似乎不会给他们带来特别大的负担。
