Disabil Rehabil. 2013 Feb;35(3):244-56. doi: 10.3109/09638288.2012.694574. Epub 2012 Jul 3.
The importance of addressing mental well-being while stroke patients are in hospital has been recognized by policy makers but there is a gap between rhetoric and reality. This study explored the potential for using a person-centred, artist facilitated, one-to-one arts programme to improve the emotional and mental well-being of patients, which may be adversely affected as a result of the negative experiences arising from stroke and hospitalization.
The study focused on those patients remaining in hospital for above average durations and included patients with functional, cognitive and speech or language impairments. After participation in the arts programme and before discharge, semi-structured interviews were undertaken with sixteen patients, and in the case of two patients with severe cognitive loss, a relative, as a proxy, was interviewed. Interviews explored the experience of stroke and hospital stay and the meaning and value of taking part in Time Being Stroke and the data was analysed thematically. To underpin and contextualize the interview material, clinical status and treatment information routinely collected by the multi-disciplinary stroke team was obtained and analysed; in addition material on the content of each session was recorded by artists and analysed.
Patients' accounts suggest that participation in a person-centred arts programme contributed to their mental well-being. As might be expected from a person-centred intervention, benefits varied across the sample, but the most commonly mentioned positive aspects of participation included the experiences of: pleasure and enjoyment, a sense of connection with the artists, mental stimulation, learning and creativity, engagement in purposeful occupation and relief from boredom, and reconnection with valued aspects of the self. These experiences of participation contrast strongly with the acute and chronic distress associated with stroke, impairment, and spending long periods of time in hospital.
Arts interventions such as the one implemented and evaluated in this study provide a positive and valuable experience for longer staying stroke patients, contributing to their mental well-being during an otherwise distressing illness and hospital stay.
政策制定者已经认识到在患者住院期间关注心理健康的重要性，但在言辞和现实之间存在差距。本研究探讨了使用以人为中心、艺术家协助、一对一的艺术计划来改善患者情绪和心理健康的潜力，这些患者可能会因中风和住院带来的负面经历而受到影响。
该研究侧重于那些在医院停留时间超过平均时间的患者，包括有功能、认知和言语或语言障碍的患者。在参加艺术计划并出院前，对 16 名患者进行了半结构化访谈，对于两名认知严重受损的患者，由其亲属作为代表进行了访谈。访谈内容探讨了中风和住院经历，以及参与“当下中风”的意义和价值，对数据进行了主题分析。为了支持和理解访谈材料，还收集并分析了多学科中风团队常规收集的临床状况和治疗信息；此外，艺术家记录了每次会议的内容，并进行了分析。
患者的描述表明，参与以人为中心的艺术计划有助于他们的心理健康。正如以人为中心的干预所预期的那样，益处在样本中有所不同，但患者最常提到的参与的积极方面包括：愉悦和享受、与艺术家的联系感、精神刺激、学习和创造力、从事有目的的工作以及摆脱无聊，以及重新连接到自我的有价值的方面。这些参与体验与中风、损伤以及长时间住院所带来的急性和慢性痛苦形成了鲜明的对比。
像本研究中实施和评估的艺术干预措施为住院时间较长的中风患者提供了积极和有价值的体验，有助于改善他们在疾病和住院期间的心理健康。
