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构建道德身体:患有多种慢性病的老年人的自我保健。

Constructing the moral body: self-care among older adults with multiple chronic conditions.

机构信息

School of Kinesiology, The University of British Columbia, 156-1924 West Mall, Vancouver, BC, V6T 1Z2, Canada.

出版信息

Health (London). 2013 May;17(3):211-28. doi: 10.1177/1363459312451181. Epub 2012 Jul 5.

Abstract

Older adults are increasingly living with and managing multiple chronic conditions. The self-management of illness occurs in a social and political context in which the responsibility for health has shifted from the State to the individual, who is expected to be an active consumer of health care. Although there has been extensive investigation of the management of single chronic conditions, the realities of living with multiple morbidities have largely been ignored, particularly among older adults. Addressing this gap, our study entailed in-depth interviews with 35 older Canadian adults, aged 73 to 91, who had between three and 14 chronic conditions. Self-care emerged as a primary means by which our participants managed their illnesses. Specifically, all of our participants were engaged in some form of self-care in order to cope with often debilitating physical symptoms and functional losses. They also utilized self-care because they had reached the limits of available medical treatment options. Finally, our participants argued that self-care was a moral responsibility that was underscored by gendered motivations. Whereas the men tended to emphasize the importance of self-care for the achievement of masculine ideals of control and invulnerability, the women suggested that self-care allowed them to maintain feminine norms of selflessness and sensitivity to the needs of others. In this way, self-care enabled the men and women to reframe their aging, chronically ill bodies as moral, socially valued bodies. We discuss our findings in relation to the extant research and theorizing pertaining to self-care, gender, and healthism.

摘要

老年人越来越多地患有多种慢性疾病并对其进行管理。疾病的自我管理发生在一个社会和政治背景中,在这个背景下,健康的责任已经从国家转移到个人身上,个人被期望成为医疗保健的积极消费者。尽管对单一慢性疾病的管理进行了广泛的研究,但对多种病态的生活现实在很大程度上被忽视了,尤其是在老年人中。为了弥补这一差距,我们的研究对 35 名年龄在 73 岁至 91 岁之间的加拿大老年人进行了深入访谈,他们患有 3 至 14 种慢性疾病。自我护理是我们参与者管理疾病的主要手段。具体来说,我们所有的参与者都在进行某种形式的自我护理,以应对经常使人衰弱的身体症状和功能丧失。他们还利用自我护理,因为他们已经达到了现有医疗治疗方案的极限。最后,我们的参与者认为自我护理是一种道德责任,这种责任受到性别动机的强调。虽然男性倾向于强调自我护理对于实现控制和不受伤害的男性理想的重要性,但女性则认为自我护理使他们能够保持无私和对他人需求敏感的女性规范。通过这种方式,自我护理使男性和女性能够重新定义他们老化、患有慢性疾病的身体为有道德、有社会价值的身体。我们将我们的发现与现有的关于自我护理、性别和健康主义的研究和理论联系起来进行讨论。

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