Cockett Andrea
Florence Nightingale School of Nursing and Midwifery, King's College London, London, England.
Int J Palliat Nurs. 2012 Jun;18(6):301-6. doi: 10.12968/ijpn.2012.18.6.301.
Children who use long-term ventilation at home and their parents find it difficult to access suitable respite services for short breaks. This article describes, through the use of a case study, a project to develop a respite service for such children at a children's hospice in England. The service development was a response to local need, which included a requirement to develop bespoke assessment documentation and processes as well as a comprehensive staff development package. The article follows the journey of one family through the development and use of the new service.
在家中使用长期通气设备的儿童及其父母发现,很难获得合适的短期喘息服务。本文通过一个案例研究,描述了在英国一家儿童临终关怀院为这类儿童开发喘息服务的项目。该服务的开发是对当地需求的回应,其中包括制定定制化的评估文件和流程,以及一套全面的员工发展方案。本文讲述了一个家庭在新服务的开发和使用过程中的经历。