Grinyer Anne, Payne Sheila, Barbarachild Zephyrine
School of Health and Medicine, Lancaster University, Lancaster, UK.
Int J Palliat Nurs. 2010 Oct;16(10):505-10. doi: 10.12968/ijpn.2010.16.10.79216.
The changes within children's palliative care services in the UK over the last decade highlight the importance of respite provision. This article reports on an evaluation of a children's hospice in northern England that was undertaken to elicit the views of 24 service users on their experiences of respite care in the hospice: parents, children and young people, siblings, guardians and family carers. Data were collected using in-depth interviews, transcribed and submitted to framework analysis. The findings demonstrate the tensions that parents in need of respite care feel as a result of the power unconsciously exercised by staff. Redistribution of resources and reordering of priorities are recommended to prevent the inadvertent impact upon families.
过去十年间，英国儿童姑息治疗服务的变化凸显了提供喘息护理的重要性。本文报道了对英格兰北部一家儿童临终关怀院的评估，该评估旨在征求24位服务使用者对他们在临终关怀院接受喘息护理经历的看法，这些使用者包括父母、儿童及青少年、兄弟姐妹、监护人及家庭护理人员。通过深度访谈收集数据，进行转录并提交至框架分析。研究结果表明，由于工作人员无意识地行使权力，需要喘息护理的父母会感到紧张。建议重新分配资源并重新安排优先事项，以防止对家庭产生意外影响。
