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[克罗恩病的社会职业后果]

[Socioprofessional consequences of Crohn disease].

作者信息

Duclos B, Planchon F, Jouin H, Chamouard P, Schieber J P, Ubrich-Leuilliot M, Baumann R, Weill J P

机构信息

Service d'Hépato-Gastroentérologie et d'Assistance Nutritive, Hôpital de Hautepierre, Strasbourg.

出版信息

Gastroenterol Clin Biol. 1990;14(12):966-72.

PMID:2289671
Abstract

To evaluate evolutivity and social repercussions of Crohn's disease, the same gastroenterologist interviewed 151 out of 197 patients with Crohn's disease (77.5 percent) who had been hospitalized from 1964 to 1986 in our unit. The other 46 could not be traced or refused to participate. There was no difference regarding age, sex, duration of illness, pattern of lesions and operations between the two groups. At the time of observation, mean follow-up was 7.8 years and two thirds of the patients had inactive disease. During the previous year, the course of the disease was quiescent in 50 percent of all patients; this rate increased with duration of follow-up and time from surgery. A constant rate of stable course was observed (20 percent) irrespective of duration of disease and time of surgery. The interviews were compared with those obtained from an age and sex-matched group of 70 previously healthy subjects admitted to the hospital for less than one month. The education and socioeconomic levels were higher in patients with Crohn's disease than in controls, in spite of the fact that 25 percent of patients whose disease begun during scholarship complained of difficulties at school, and nearly 20 percent of all patients were partially or totally unable to work. Sports and cultural activities were the same in Crohn's disease and in the control group. Tobacco intake was slightly higher at time of diagnosis but it was equal in both groups at the time of the interview. Non allopathic advice or treatment were sought by 48 percent of Crohn's disease patients (7 percent in controls).(ABSTRACT TRUNCATED AT 250 WORDS)

摘要

为评估克罗恩病的病情发展及社会影响,同一位胃肠病学家对197例克罗恩病患者中的151例(77.5%)进行了访谈,这些患者于1964年至1986年在我们科室住院。另外46例无法追踪或拒绝参与。两组在年龄、性别、病程、病变模式和手术方面无差异。在观察时,平均随访时间为7.8年,三分之二的患者病情处于非活动期。在前一年,所有患者中有50%的疾病进程处于静止状态;这一比例随随访时间和手术时间的延长而增加。无论病程长短和手术时间如何,均观察到稳定病程的恒定比例(20%)。将这些访谈结果与从70名年龄和性别匹配的、因住院时间少于1个月而入院的既往健康受试者那里获得的访谈结果进行比较。尽管25%在奖学金期间发病的患者抱怨在学校有困难,且近20%的所有患者部分或完全无法工作,但克罗恩病患者的教育和社会经济水平高于对照组。克罗恩病组和对照组的体育和文化活动相同。诊断时烟草摄入量略高,但访谈时两组相等。48%的克罗恩病患者寻求非正统的建议或治疗(对照组为7%)。(摘要截取自250字)

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