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类风湿关节炎患者的足部健康教育——一些患者的观点。

Foot health education for people with rheumatoid arthritis - some patient perspectives.

机构信息

Centre for Health, Sport and Rehabilitation Research, University of Salford, Frederick Road, Salford, UK.

出版信息

J Foot Ankle Res. 2012 Aug 31;5(1):23. doi: 10.1186/1757-1146-5-23.

DOI:10.1186/1757-1146-5-23
PMID:22937987
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3519771/
Abstract

BACKGROUND

Patient education is an important component of foot health management for people with rheumatoid arthritis (RA). The content and strategies for delivery require investigation in relation to the patients' needs. This study explores patients' experiences of foot health education, to inform how the patients' needs could be identified in clinical practice and inform effective education delivery.

METHOD

A focus group was used to collect data. The dialogue was recorded digitally, transcribed verbatim and analysed using a structured thematic approach. Member checking and peer review added to credibility of the data.Six themes emerged; (i) content and purpose of patient education - what it should be, (ii) content of patient education - what it should not be, (iii) timing of information on foot health, (iv) method of delivery, (v) ability to engage with foot health education and (vi) the patient/practitioner relationship.

CONCLUSIONS

This study identified aspects of patient education considered important by this group of patients in relation to content, timing and delivery, forming the basis for further research on clinical and patient focussed outcomes of patient education.Identifying health education needs and provision of supportive verbal and written information can foster an effective therapeutic relationship, supporting effective foot health education for people with RA.

摘要

背景

患者教育是类风湿关节炎(RA)患者足部健康管理的重要组成部分。内容和传递策略需要针对患者的需求进行调查。本研究探讨了患者对足部健康教育的体验,以了解如何在临床实践中确定患者的需求,并为有效的教育传递提供信息。

方法

采用焦点小组收集数据。使用结构化主题分析方法对数字记录的对话进行转录和分析。成员检查和同行评审增加了数据的可信度。出现了六个主题:(i)患者教育的内容和目的-应该是什么,(ii)患者教育的内容-不应该是什么,(iii)足部健康信息的时间,(iv)传递方式,(v)参与足部健康教育的能力,(vi)医患关系。

结论

本研究确定了这组患者认为与内容、时间和传递相关的重要患者教育方面,为进一步研究患者教育的临床和患者重点结果奠定了基础。确定健康教育需求并提供支持性的口头和书面信息可以促进有效的治疗关系,为 RA 患者提供有效的足部健康教育。

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本文引用的文献

1
Foot health education for people with rheumatoid arthritis: the practitioner's perspective.类风湿关节炎患者的足部健康教育:从业者的观点。
J Foot Ankle Res. 2012 Jan 10;5(1):2. doi: 10.1186/1757-1146-5-2.
2
Therapeutic foot health education for patients with rheumatoid arthritis: a narrative review.类风湿关节炎患者的足部治疗健康教育:一项叙述性综述
Musculoskeletal Care. 2011 Sep;9(3):141-51. doi: 10.1002/msc.205. Epub 2011 Jun 1.
3
Guidelines for the management of the foot health problems associated with rheumatoid arthritis.类风湿关节炎相关足部健康问题的管理指南
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Foot care education in patients with diabetes at low risk of complications: a consensus statement.糖尿病患者足部护理教育:低并发症风险患者共识声明。
Diabet Med. 2011 Feb;28(2):162-7. doi: 10.1111/j.1464-5491.2010.03206.x.
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Characteristics and development of therapeutic patient education in rheumatoid arthritis: analysis of the 2003-2008 literature.类风湿关节炎治疗性患者教育的特点和发展:对 2003-2008 年文献的分析。
Joint Bone Spine. 2010 Oct;77(5):405-10. doi: 10.1016/j.jbspin.2010.01.010. Epub 2010 Apr 8.
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Patient education in arthritis: helping people change.关节炎患者教育:帮助人们做出改变。
Musculoskeletal Care. 2003 Sep;1(2):84-97. doi: 10.1002/msc.44.
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Foot pain in rheumatoid arthritis prevalence, risk factors and management: an epidemiological study.类风湿关节炎患者足部疼痛的患病率、风险因素及管理:一项流行病学研究。
Clin Rheumatol. 2010 Mar;29(3):255-71. doi: 10.1007/s10067-009-1312-y. Epub 2009 Dec 8.
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Rheumatoid arthritis patient education: RA patients' experience.类风湿关节炎患者教育:类风湿关节炎患者的经历
J Clin Nurs. 2009 Jul;18(14):2058-65. doi: 10.1111/j.1365-2702.2008.02763.x.
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Patients' views of a multimedia resource featuring experiences of rheumatoid arthritis: pilot evaluation of www.healthtalkonline.org.患者对呈现类风湿关节炎经历的多媒体资源的看法:对www.healthtalkonline.org的初步评估
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