Department of Surgery, University of Groningen, University Medical Center Groningen, Hanzeplein 1, 9713 GZ, Groningen, The Netherlands.
Clin Nutr. 2013 Jun;32(3):396-403. doi: 10.1016/j.clnu.2012.08.023. Epub 2012 Sep 3.
BACKGROUND & AIMS: Long-term home parenteral nutrition (HPN) may cause distress and negatively affect quality of life (QoL). The HPN version of the Distress Thermometer and Problem List (DT/PL) was developed to evaluate distress during HPN. This study validates the DT/PL, examines referral wish for additional care, assesses opinions on the DT/PL, and studies risk factors for distress and referral wish.
Dutch and Scottish patients completed questions on socio-demographic and HPN-related general characteristics, the DT/PL, referral wish, the Hospital Anxiety and Depression Scale, and opinions on the DT.
The HPN version of the DT/PL seemed valid and the PL sufficiently reliable. Cut-off score appeared to be 6. Consequently, 45% of patients were diagnosed as clinically distressed. Fifty-three percent had a referral wish. Emotional and physical problems were most strongly associated with distress. Not being able to work related to elevated distress. Female gender and co-morbidity related to referral wish. Opinions on the DT were generally positive.
The DT/PL appears to be a good instrument to regularly gain insight into distress and referral wish in HPN patients. Use of the DT/PL facilitates support to patients who most need and want it, thus improving quality of care and QoL.
长期家庭肠外营养（HPN）可能会引起不适，并对生活质量（QoL）产生负面影响。为了评估 HPN 期间的不适，开发了 HPN 版的痛苦温度计和问题清单（DT/PL）。本研究旨在验证 DT/PL，调查对额外护理的转诊意愿，评估对 DT/PL 的看法，并研究导致痛苦和转诊意愿的风险因素。
荷兰和苏格兰的患者完成了关于社会人口统计学和 HPN 相关一般特征、DT/PL、转诊意愿、医院焦虑和抑郁量表以及对 DT 的看法的问题。
HPN 版的 DT/PL 似乎有效，PL 足够可靠。截断分数似乎为 6。因此，45%的患者被诊断为临床痛苦。53%的患者有转诊意愿。情感和身体问题与痛苦最密切相关。无法工作与升高的痛苦有关。女性性别和合并症与转诊意愿有关。对 DT 的看法普遍较为积极。
DT/PL 似乎是一种很好的工具，可以定期深入了解 HPN 患者的痛苦和转诊意愿。使用 DT/PL 可以为最需要和最想要帮助的患者提供支持，从而提高护理质量和 QoL。
