Nagy Beáta, Laczkóné Majer Réka
Debreceni Egyetem, Orvos- és Egészségtudományi Centrum, Népegészségügyi Kar Magatartástudományi Intézet, Klinikai és Egészségpszichológiai Tanszék Debrecen.
Orv Hetil. 2012 Sep 23;153(38):1511-9. doi: 10.1556/OH.2012.29369.
Inflammatory bowel disease is a chronic disease with a fluctuating course and unknown origin. Its two major forms are Crohn's disease and ulcerative colitis.
The authors attempted to analyse the quality of life of patients with inflammatory bowel disease as compared to healthy persons and patients with asthma in order to identify specific factors which most significantly affect the quality of life of these patients.
269 subjects participated in the study (control group, 115 subjects; Crohn's disease, 67 patients; ulcerative colitis, 25 patients; asthma, 62 patients). The following methods were used: WHO-5, IIRS, SIBDQ and AQLQ(S) questionnaires and content analysis.
Patients with inflammatory bowel disease had the worst quality of life with respect to both subjective well-being and burden of disease. The results obtained from questionnaires developed for the analysis of quality of life indicated that extraintestinal symptoms and emotional problems are the major factors which interfere with the quality of life of patients with inflammatory bowel disease. These findings were confirmed by content analysis of interviews with patients.
The authors recommend that more attention should be paid to improving the quality of life of patients with inflammatory bowel disease and helping them to live with the illness, especially at the level of interpersonal relations.
炎症性肠病是一种病程波动且病因不明的慢性疾病。其两种主要形式为克罗恩病和溃疡性结肠炎。
作者试图分析炎症性肠病患者与健康人及哮喘患者相比的生活质量，以确定最显著影响这些患者生活质量的具体因素。
269名受试者参与了该研究（对照组115名受试者；克罗恩病患者67例；溃疡性结肠炎患者25例；哮喘患者62例）。采用了以下方法：WHO-5、IIRS、SIBDQ和AQLQ(S)问卷以及内容分析。
炎症性肠病患者在主观幸福感和疾病负担方面的生活质量最差。为分析生活质量而编制的问卷结果表明，肠外症状和情绪问题是干扰炎症性肠病患者生活质量的主要因素。对患者访谈的内容分析证实了这些发现。
作者建议应更加关注改善炎症性肠病患者的生活质量，并帮助他们与疾病共存，尤其是在人际关系层面。
