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2010年法律对患者权利的规定对比利时弗拉芒地区儿科医生执业的影响

The influence of the law on patient's rights on the practice of the Flemish paediatricians anno 2010.

作者信息

Deneyer M, Marchand J, Buy R, Michel L, Holsters D, Vandenplas Y

机构信息

UZ Brussel Kinderen, Vrije Universiteit Brussel, Belgium.

出版信息

Acta Chir Belg. 2012 Jul-Aug;112(4):297-301.

Abstract

BACKGROUND

The law on patients' rights in Belgium was issued in 2002. The new legal framework recommends the establishment of a true dialogue between physician and patient, and it assigns decisive priority to the adolescent rather than to the physician or his parents.

PURPOSE AND METHODS

The purpose of this study is to map the current interpretation of the paediatrician and the realisation of the law in practice. The answers of 117 Flemish paediatricians to an anonymous questionnaire were analyzed.

RESULTS

Only 7.8% of the paediatricians state that they know the law well. 15.5% experience the law as a burden. 20.9% have adopted a different attitude when rendering care to adolescents under impulse of this law. 6.2% say they do not strictly follow the law. 27.8% think that the emancipating thought is too far-reaching. Most paediatricians apply protocols to interpret the traditional values that are stamped as being good medical practice: high quality care (81%), free patient's choice (70.7%), adequate pain control (77.4%). On the other hand paediatricans seldom dispose of procedures regarding the more emancipated amenities in the law such as obtaining informed consent (16.4%), access to the medical file (24.8%) and safe-guarding the privacy (13%). In practice most of the physicians offer the possibility of a free choice in 80% of the cases. All questioned physicians strive for a high quality care, for adequate pain control and for a careful maintained medical file. 79.1% of the physicians transfer to the parents all medical information regarding the adolescent. Proper experience and expertise (80.7%), case by case completed, are most often used as the basis for the judgment about the competence of the adolescent. From the patient's side, little advance is taken to exercise his own rights. Barely 1% of the adolescents consulting a paediatrician use their legal right to autonomously consent to a medical intervention. In barely 0.16% access is requested to the medical file. Practically no complaints are received regarding the law on patients' rights (0.1% in intramural setting, versus 0.001% extramural).

CONCLUSION

The law on patients' rights is, after 8 years of issuance, badly penetrated in the paediatric practice. On the one hand this is due to a poor knowledge of the law as well from the side of the physician as from the side of the adolescent and/or his parents. On the other hand 42.2% of the paediatricians experience difficulties with the practical interpretation of the law because of the lack of applicable guidelines. An important obstacle is the fact that more than a quarter of the paediatricians do not agree with the in the law foreseen autonomy of the adolescents. For that reason, paediatricians urgently need to be instructed in these matters. It is the moral duty of the Society of Paediatrics to organize workshops on these matters and develop clear guidelines concerning this law. Proper application of the legal context, the handling of the watertight procedures and the necessary communication in this respect is indispensable for the confidence and will lower the barrier for adolescents to use the healthcare system.

摘要

背景

比利时关于患者权利的法律于2002年颁布。新的法律框架建议在医生和患者之间建立真正的对话,并将决定性的优先权赋予青少年而非医生或其父母。

目的与方法

本研究的目的是梳理儿科医生目前对该法律的解读以及该法律在实践中的落实情况。对117名弗拉芒地区的儿科医生针对一份匿名问卷的回答进行了分析。

结果

只有7.8%的儿科医生表示他们对该法律非常了解。15.5%的医生认为该法律是一种负担。20.9%的医生在该法律的推动下,为青少年提供医疗服务时采取了不同的态度。6.2%的医生表示他们没有严格遵守该法律。27.8%的医生认为赋予青少年自主权的想法过于超前。大多数儿科医生采用一些规范来阐释那些被视为良好医疗实践的传统价值观:高质量护理(81%)、患者自由选择(70.7%)、充分控制疼痛(77.4%)。另一方面,儿科医生很少有关于该法律中更多赋予青少年自主权的便利措施的程序,比如获得知情同意(16.4%)、查阅病历(24.8%)以及保护隐私(13%)。在实践中,大多数医生在80%的情况下提供自由选择的可能性。所有接受询问的医生都致力于提供高质量护理、充分控制疼痛以及妥善保管病历。79.1%的医生会将所有关于青少年的医疗信息告知其父母。根据具体情况积累的适当经验和专业知识(80.7%),最常被用作判断青少年能力的依据。从患者方面来看,很少有人主动行使自己的权利。咨询儿科医生的青少年中,仅有1%使用其法律权利自主同意医疗干预。几乎没有青少年(0.16%)要求查阅病历。实际上几乎没有收到关于患者权利法律的投诉(住院环境中为0.1%,门诊环境中为0.001%)。

结论

患者权利法律颁布8年后,在儿科实践中的渗透情况很差。一方面,这是由于医生、青少年及其父母对该法律的了解不足。另一方面,42.2%的儿科医生由于缺乏适用的指导方针,在法律的实际解读方面存在困难。一个重要的障碍是超过四分之一的儿科医生不同意法律中赋予青少年的自主权。因此,儿科医生迫切需要在这些问题上接受培训。儿科学会有道德义务组织关于这些问题的研讨会,并制定关于该法律的明确指导方针。在这方面正确应用法律背景、处理严密的程序以及进行必要的沟通对于建立信任至关重要,并且会降低青少年利用医疗保健系统的障碍。

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