Borracci Raúl A, Manente Diego, Giorgi Mariano A, Calderón Gustavo, Ciancio Alejandro, Doval Hernán C
Facultad de Ciencias Biomédicas, Universidad Austral, Buenos Aires, Argentina.
Medicina (B Aires). 2012;72(5):393-8.
A survey was carried out among patients who concurred to cardiologic services to know how patients preferred to be informed about their health status, and the demographic characteristics associated to these preferences, considering the following items: knowledge about the disease, information about different therapeutic options and decision-making. From 770 people surveyed, 738 (95.8%) answered the form completely. A trend to trust only in the doctor's knowledge to obtain information (81.7%), in wanting to know the options of treatment and express one's point of view (85.9%), and to involve the family in the decisions (63.2%) was observed. 9.6% preferred to receive the minimum necessary information or "to know nothing" about an alleged serious disease. Males tended less to request options and give opinion on the subject (or: 0.64), giving less freedom to family involvement (or: 1.31). people with a lower social and economical level claim fewer options (or: 0.48) and gave less family participation (or = 1.79). Natives from other South American countries had a minor tendency to demand for options and express their thoughts (or: 0.60); and the ones with lower education level trusted less in the doctor's knowledge (or: 1.81), demanded fewer options (or: 0.45) and chose not to know the severity of the disease (or: 0.56). the analysis of the demographical variables allowed to define preferences associated to age, sex, origin, education, religion and health status. In conclusion, although it is imperative to promote the patient's autonomy, individual preferences must be taken into account before informing and compromising the patient in decision-making about his disease.
对同意接受心脏科服务的患者进行了一项调查，以了解患者希望如何获知自己的健康状况，以及与这些偏好相关的人口统计学特征，调查考虑了以下项目：疾病知识、不同治疗方案的信息以及决策制定。在770名接受调查的人中，738人（95.8%）完整填写了表格。结果发现，患者存在以下倾向：仅信任医生的知识来获取信息（81.7%），希望了解治疗方案并表达自己的观点（85.9%），以及让家人参与决策（63.2%）。9.6%的患者倾向于接受关于某种疑似严重疾病的最少必要信息或“什么都不想知道”。男性要求提供方案并就该主题发表意见的倾向较低（或：0.64），给予家人参与决策的自由度也较低（或：1.31）。社会经济水平较低的人群要求提供的方案较少（或：0.48），家人参与度也较低（或 = 1.79）。来自其他南美国家的本地人要求提供方案并表达想法的倾向较小（或：0.60）；教育水平较低的人对医生的知识信任度较低（或：1.81），要求提供的方案较少（或：0.45），并且选择不了解疾病的严重程度（或：0.56）。对人口统计学变量的分析有助于确定与年龄、性别、出身、教育、宗教和健康状况相关的偏好。总之，尽管促进患者自主性势在必行，但在告知患者并让其参与有关自身疾病的决策之前，必须考虑个人偏好。
