Renal Medicine, Toowoomba Hospital, Toowoomba, Queensland, Australia.
Nephrol Dial Transplant. 2012 Oct;27 Suppl 3(Suppl 3):iii139-45. doi: 10.1093/ndt/gfs258.
Chronic kidney disease (CKD) is recognized as a major public health problem in Australia with significant mortality, morbidity and economic burden. However, there is no comprehensive surveillance programme to collect, collate and analyse data on CKD in a systematic way.
We describe an initiative called CKD Queensland (CKD.QLD), which was established in 2009 to address this deficiency, and outline the processes and progress made to date. The foundation is a CKD Registry of all CKD patients attending public health renal services in Queensland, and patient recruitment and data capture have started.
We have established through early work of CKD.QLD that there are over 11,500 CKD patients attending public renal services in Queensland, and these are the target population for our registry. Progress so far includes conducting two CKD clinic site surveys, consenting over 3000 patients into the registry and initiation of baseline data analysis of the first 600 patients enrolled at the Royal Brisbane and Women's Hospital (RBWH) site. In addition, research studies in dietary intake and CKD outcomes and in models of care in CKD patient management are underway.
Through the CKD Registry, we will define the distribution of CKD patients referred to renal practices in the public system in Queensland by region, remoteness, age, gender, ethnicity and socioeconomic status. We will define the clinical characteristics of those patients, and the CKD associations, stages, co-morbidities and current management. We will follow the course and outcomes in individuals over time, as well as group trends over time. Through our activities and outcomes, we are aiming to provide a nidus for other states in Australia to join in a national CKD registry and network.
慢性肾脏病（CKD）在澳大利亚被认为是一个主要的公共卫生问题，其具有较高的死亡率、发病率和经济负担。然而，目前还没有一个全面的监测计划来系统地收集、整理和分析 CKD 数据。
我们描述了一项名为昆士兰 CKD（CKD.QLD）的计划，该计划于 2009 年成立，旨在解决这一不足，并概述了迄今为止取得的进展和过程。该计划的基础是一个涵盖所有在昆士兰州公共卫生肾脏服务就诊的 CKD 患者的 CKD 登记处，目前已经开始招募患者和数据采集工作。
通过 CKD.QLD 的早期工作，我们发现昆士兰州有超过 11500 名 CKD 患者在接受公共肾脏服务，这些患者是我们登记处的目标人群。迄今为止的进展包括进行了两次 CKD 诊所现场调查，同意将 3000 多名患者纳入登记处，并开始对在皇家布里斯班妇女医院（RBWH）登记的前 600 名患者进行基线数据分析。此外，正在进行关于 CKD 患者管理中饮食摄入和 CKD 结局以及护理模式的研究。
通过 CKD 登记处，我们将根据地区、偏远程度、年龄、性别、种族和社会经济地位来确定在昆士兰州公共系统中被转诊到肾脏实践的 CKD 患者的分布情况。我们将确定这些患者的临床特征，以及 CKD 关联、分期、合并症和当前管理情况。我们将随着时间的推移跟踪个体的病程和结局，以及随时间推移的群体趋势。通过我们的活动和成果，我们旨在为澳大利亚其他州加入国家 CKD 登记处和网络提供一个核心。
