Chwalek W, Wilker F W, Becker S
Abteilung für Medizinische Psychologie und Medizinische Soziologie, Johannes-Gutenberg-Universität, Mainz.
Geburtshilfe Frauenheilkd. 1990 Jan;50(1):49-55. doi: 10.1055/s-2007-1026431.
To be delivered of a child with cleft lip and palate is an extreme psychic stress factor for the mother. In coping with this, she is left to the support of the caring medical staff. Therefore, the aim of the present study was 1. to ascertain, to what extent mothers of children with cleft lip and palate are given information on the malformation, and receive emotional support by the medical staff; and 2. to determine the effect such experiences have on their ability to cope. For this purpose we developed a special questionnaire, which was completed by 154 mothers of such children. Retrospectively, a relevant part of them criticised not only the communication and the contents of information, but also the emotional support as deficient. A correlation between these determinants and largely insufficient coping was statistically confirmed. Our results should be taken into account in respect of the practical requirements when caring for mothers of children with a cleft lip and palate.
生下患有唇腭裂的孩子对母亲来说是一个极大的精神压力因素。在应对这一情况时，她只能依靠医护人员的支持。因此，本研究的目的是：1. 确定医护人员在多大程度上向唇腭裂患儿的母亲提供了有关畸形的信息并给予情感支持；2. 确定这些经历对她们应对能力的影响。为此，我们设计了一份特殊问卷，154位此类患儿的母亲填写了该问卷。回顾来看，她们中的相当一部分人不仅批评了沟通和信息内容，还认为情感支持不足。统计结果证实了这些因素与应对能力严重不足之间的相关性。在照顾唇腭裂患儿母亲的实际需求方面，应考虑我们的研究结果。
