Therapies Department, The Royal Marsden NHS Foundation Trust, London, UK.
Eur J Cancer Care (Engl). 2013 Mar;22(2):232-44. doi: 10.1111/ecc.12016. Epub 2012 Nov 19.
This paper reports on a study of perspectives of rehabilitation needs by 33 people treated for upper gastrointestinal and gynaecological cancers. This study used focus groups informed by grounded theory and involved adult participants who had completed radical treatment at a UK cancer centre. Patients were involved in the design. Findings indicate that these patients are likely to have ongoing rehabilitation needs and that there was poor awareness of possible treatment of symptoms and of rehabilitation services. Novel findings include distinct perspectives of adults who have completed treatment for upper gastrointestinal and gynaecological cancers regarding their rehabilitation needs. Patients on surgical pathways, or who had longer hospital stays, had a better understanding of the rehabilitation services available to them and they accessed them more easily to ameliorate their post-treatment symptoms. Furthermore rehabilitation services are not equally accessed by patients on different treatment pathways. A grounded theory of cancer rehabilitation was developed with core categories of: impacts on the person, adjustment after treatment, individualised tailored support and information sources. The overarching theme is 'seeking a new normal'. Individualised tailored support is integral to seeking and establishing a new normal. Routine assessment and referral for rehabilitation treatment warrants further evaluation in these groups.
本文报告了一项针对 33 名接受上胃肠道和妇科癌症治疗的人对康复需求的看法的研究。这项研究采用了扎根理论的焦点小组，涉及在英国癌症中心接受根治性治疗的成年参与者。患者参与了研究设计。研究结果表明，这些患者可能存在持续的康复需求，并且对可能的症状治疗和康复服务缺乏认识。新的发现包括完成上胃肠道和妇科癌症治疗的成年人对其康复需求的不同看法。接受手术治疗或住院时间较长的患者对可获得的康复服务有更好的了解，并且更容易获得这些服务来缓解治疗后的症状。此外，不同治疗途径的患者对康复服务的利用程度也不同。一个癌症康复的扎根理论模型被开发出来，其核心类别包括：对个人的影响、治疗后的调整、个性化定制的支持和信息来源。首要主题是“寻求新的常态”。个性化定制的支持是寻求和建立新的常态的基础。对康复治疗的常规评估和转介值得在这些群体中进一步评估。
