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芬兰阿尔茨海默病患者家庭照顾者的生活方向:日记研究。

Life orientation in Finnish family caregivers' of persons with Alzheimer's disease: a diary study.

机构信息

Finnish Doctoral Programme in Nursing Science, University of Eastern Finland, Kuopio, Finland.

出版信息

Nurs Health Sci. 2012 Dec;14(4):480-7. doi: 10.1111/j.1442-2018.2012.00721.x.

Abstract

Family caregivers provide the majority of home care of people with Alzheimer's disease. In this study, we discuss family caregivers' life orientation and changes in life orientation during the first year after the diagnosis of Alzheimer's disease. Family caregivers' unstructured diaries (n = 83), of the first six months after diagnosis (years 2002-2004), were analyzed using qualitative content analysis. Two core themes emerged from the data analysis: the meaning of the onset of Alzheimer's disease for the lives of family caregivers, and restructuring life in its entirety. Family caregivers face challenges in their life orientation after the onset of their family members' Alzheimer's disease. Their personal milieu, familial cohesion, and conception of the future consequentially change. They face multiple challenges in the process of becoming caregivers. In this study, it was revealed that the process starts before the diagnosis of Alzheimer's disease and has an impact on their future. We conclude that family caregivers' well-being should be assessed at the time of the diagnosis of Alzheimer's disease.

摘要

家庭照顾者为阿尔茨海默病患者提供了大部分的家庭护理。在这项研究中,我们讨论了家庭照顾者在阿尔茨海默病诊断后的第一年的生活方向及其变化。使用定性内容分析对 83 名家庭照顾者在诊断后前六个月(2002-2004 年)的非结构化日记进行了分析。数据分析得出了两个核心主题:阿尔茨海默病发作对家庭照顾者生活的意义,以及整个生活的重构。家庭照顾者在其家庭成员患阿尔茨海默病后,其生活方向面临挑战。他们的个人环境、家庭凝聚力和对未来的看法随之改变。他们在成为照顾者的过程中面临着多重挑战。在这项研究中,揭示了这个过程始于阿尔茨海默病诊断之前,并对他们的未来产生影响。我们的结论是,应该在阿尔茨海默病诊断时评估家庭照顾者的幸福感。

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