Lassaletta A, Andión M, Garrido-Colino C, Gutierrez-Carrasco I, Echebarria-Barona A, Almazán F, López-Ibor B, Ortega-Acosta M J
Servicio de Hemato-Oncología Pediátrica, Hospital Infantil Universitario Niño Jesús, Madrid, España.
An Pediatr (Barc). 2013 Apr;78(4):268.e1-7. doi: 10.1016/j.anpedi.2012.09.024. Epub 2012 Nov 30.
Little attention was paid to adolescents with Cancer in Spain up to 2010. In 2011 an "Adolescents with Cancer Committee" was established by the Spanish Society of Pediatric Hemato-Oncology (SEHOP) to care for the needs of these patients. The aim of this national survey was to outline the present situation of adolescents with cancer in Spanish Pediatric Hemato-Oncology units. A web based survey assessed institutional management of adolescents with cancer. The survey was personally sent to one member of the staff of each Pediatric Hemato-Oncology unit in Spain. It included questions about epidemiology, management, psycho-social coverage, specific facilities, and follow up of these patients. A total of 40 institutions out of 41 responded to the survey (overall response rate 98%). Fifty-six percent of the institutions had patients over 14, but only 36% of the institutions treated patients up to 18 years old. Only 25.6% of the units have more than 40 new pediatric cases every year. The percentage of patients between 14 and 18 years of age is below 10% in most of the units (77%). In 30.8% and 48.7% of the institutions, pediatric hemato-oncologists treat adolescents with hematological and solid tumors, respectively. The rest of the patients are seen by adult oncologists. There is only one institution that has a physician specifically dedicated to adolescent patients, and only two units have a "teenager's room". Only 2 units have a psychologist specifically trained to treat adolescents with cancer. The survey shows that most adolescents with cancer in Spain between 14 and 18 years of age are treated by adult oncologists. Most pediatric institutions still do not have specific facilities and psychosocial support for adolescents. The SEHOP is working hard in order to improve the quality of cancer care, and the quality of survival of this population.
直到2010年，西班牙对患有癌症的青少年关注甚少。2011年，西班牙儿科血液肿瘤学会（SEHOP）成立了一个“癌症青少年委员会”，以关注这些患者的需求。这项全国性调查的目的是概述西班牙儿科血液肿瘤科室中癌症青少年的现状。一项基于网络的调查评估了癌症青少年的机构管理情况。该调查亲自发送给了西班牙每个儿科血液肿瘤科室的一名工作人员。调查内容包括这些患者的流行病学、管理、心理社会服务、特定设施以及随访情况。41家机构中有40家对调查做出了回应（总体回应率为98%）。56%的机构有14岁以上的患者，但只有36%的机构治疗18岁以下的患者。只有25.6%的科室每年有超过40例新的儿科病例。在大多数科室（77%）中，14至18岁患者的比例低于10%。在30.8%和48.7%的机构中，儿科血液肿瘤学家分别治疗患有血液系统肿瘤和实体瘤的青少年。其余患者由成人肿瘤学家诊治。只有一家机构有专门负责青少年患者的医生，只有两个科室有“青少年病房”。只有两个科室有专门接受过治疗癌症青少年培训的心理学家。调查显示，西班牙14至18岁的大多数癌症青少年由成人肿瘤学家治疗。大多数儿科机构仍然没有针对青少年的特定设施和心理社会支持。SEHOP正在努力提高癌症护理质量以及这一人群的生存质量。
