Arthritis Research UK Epidemiology Unit, University of Manchester, Manchester Academic Health Science Center, Manchester, UK.
Clin Exp Rheumatol. 2013 Mar-Apr;31(2 Suppl 76):12-7. Epub 2013 Jan 16.
To determine the extent of body image dissatisfaction (BID) in patients with self-reported systemic sclerosis (SSc)-related telangiectases and to identify the demographic, psychological and disease-related correlates of BID within a cross-sectional study.
Patients with SSc were invited to participate in a questionnaire survey. Each completed the Adjusted Satisfaction with Appearance Scale (ASWAP), the Hospital Anxiety and Depression Scale (HADS) and an open-ended telangiectases questionnaire. Thematic analysis was utilised to describe the qualitative data.
141 patients with SSc participated (83% female, 70% limited cutaneous SSc, median age 62 years). Telangiectases were reported by 113 (80%). ASWAP 'dissatisfaction with appearance' scores were significantly higher in those reporting telangiectases (p=0.02). Anxiety and depression scores were similar in those with and without telangiectases. Those reporting telangiectases were more likely to be anticentromere positive (40% vs. 18%, p=0.02) and to have a history of severe digital ischaemia (38% vs. 18%, p=0.04) than those not. Qualitative analysis revealed four themes: changes in behaviour as a result of telangiectases, public and private self-image, negative emotional impact of telangiectases and appreciation of life.
BID, as measured by the ASWAP 'dissatisfaction with appearance' subscale, was significantly higher in patients with telangiectases. Telangiectases were associated with anticentromere positivity and digital ischaemia, lending further support for telangiectases as a potential marker for vascular involvement. Qualitative analysis provided new insights into the thoughts and feelings of patients with telangiectases. Our findings highlight the impact of telangiectases and the need to address and manage related concerns.
确定报告有系统性硬化症（SSc）相关毛细血管扩张症的患者的身体意象不满（BID）程度，并在横断面研究中确定 BID 的人口统计学、心理和疾病相关相关性。
邀请 SSc 患者参加问卷调查。每位患者均完成了调整后的外貌满意度量表（ASWAP）、医院焦虑和抑郁量表（HADS）以及开放性毛细血管扩张症问卷。使用主题分析来描述定性数据。
共有 141 名 SSc 患者参加（83%为女性，70%为局限性皮肤 SSc，中位年龄 62 岁）。113 名患者（80%）报告有毛细血管扩张症。报告有毛细血管扩张症的患者的 ASWAP“对外观的不满”评分明显更高（p=0.02）。有或没有毛细血管扩张症的患者的焦虑和抑郁评分相似。报告有毛细血管扩张症的患者更有可能为抗着丝粒阳性（40%比 18%，p=0.02）且有严重手指缺血史（38%比 18%，p=0.04）。定性分析揭示了四个主题：毛细血管扩张症导致的行为变化、公共和私人自我形象、毛细血管扩张症的负面情绪影响以及对生活的欣赏。
ASWAP“对外观的不满”分量表测量的 BID 在有毛细血管扩张症的患者中明显更高。毛细血管扩张症与抗着丝粒阳性和手指缺血有关，进一步支持毛细血管扩张症作为血管受累的潜在标志物。定性分析提供了对有毛细血管扩张症患者的想法和感受的新见解。我们的研究结果强调了毛细血管扩张症的影响，需要解决和管理相关问题。
