Department of Integrative Biology and Physiology, University of Minnesota Medical School in Minneapolis, USA.
Am J Nurs. 2013 Feb;113(2):26-32; quiz 33. doi: 10.1097/01.NAJ.0000426686.84655.4a.
The goals of this study were to hear from patients with Parkinson's disease about their perioperative experiences and to describe those experiences using the patients' own words, particularly with regard to antiparkinson medication withholding and symptom exacerbation.
We conducted a descriptive, qualitative study of patients' perioperative experiences with Parkinson's disease symptom management, performing 14 semistructured interviews with 13 participants who had Parkinson's disease and had undergone any type of surgery excepting Parkinson's disease surgeries.
Patients' responses indicated concerns that hospital routines aren't flexible enough for their complex medication regimens; that hospital staff may not recognize a patient's own expertise in Parkinson's disease; and that hospital staff need more education about Parkinson's disease, especially regarding the interactions between the disease and surgery or anesthesia (or both).
Participants' comments made it clear that the actions of nurses could affect the perioperative experience for better or for worse. Our findings further highlight the need for clinical care guidelines for hospitalized patients with Parkinson's disease. Nurses should take the lead in the development of guidelines for Parkinson's disease symptom management.
本研究旨在倾听帕金森病患者的围手术期体验，并使用患者自己的语言描述这些体验，特别是关于抗帕金森病药物停药和症状恶化的问题。
我们对帕金森病患者的围手术期症状管理进行了描述性、定性研究，对 13 名参与者进行了 14 次半结构化访谈，这些参与者患有帕金森病，并且接受了除帕金森病手术以外的任何类型的手术。
患者的回答表明，他们担心医院的常规程序不够灵活，无法适应他们复杂的药物治疗方案；医院工作人员可能无法识别患者自身在帕金森病方面的专业知识；医院工作人员需要更多关于帕金森病的教育，特别是关于疾病与手术或麻醉（或两者）之间的相互作用。
参与者的评论清楚地表明，护士的行为可能会对围手术期体验产生好的或坏的影响。我们的研究结果进一步强调了需要为住院的帕金森病患者制定临床护理指南。护士应在制定帕金森病症状管理指南方面发挥主导作用。
