FOU nu, Research and Development Centre, Jakobsbergs sjukhus, Järfälla, SwedenDepartment of Medical and Health Sciences, Faculty of Health Sciences, Linköping University, Linköping, SwedenDepartment of Palliative Care Research, Ersta Sköndal University College, Stockholm, SwedenSchool of Health and Caring Sciences, Linnaeus University, Kalmar, SwedenDepartment of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, SwedenDepartment of Health Care Sciences, Ersta Sköndal University College, Stockholm, SwedenDepartment of Nursing, Gjøvik University College, Gjøvik, NorwayStockholms Sjukhem Foundation, Research and Development Department, Stockhom, Sweden.
Nurs Inq. 2013 Dec;20(4):341-51. doi: 10.1111/nin.12022. Epub 2013 Jan 22.
The patient's home is a common setting for palliative care. This means that we need to understand current palliative care philosophy and how its goals can be realized in home-care nursing encounters (HCNEs) between the nurse, patient and patient's relatives. The existing research on this topic describes both a negative and a positive perspective. There has, however, been a reliance on interview and descriptive methods in this context. The aim of this study was to explore planned HCNEs in palliative care. The design was a multiple case study based on observations. The analysis includes a descriptive and an explanation building phase. The results show that planned palliative HCNEs can be described as a process of co-creating possibilities for the patient to reach vital goals through shared knowledge in a warm and caring atmosphere, based on good caring relations. However, in some HCNEs, co-creation did not occur: Wishes and needs were discouraged or made impossible and vital goals were not reached for the patients or their relatives. Further research is needed to understand why. The co-creative process presented in this article can be seen as a concretization of the palliative care ideal of working with a person-centered approach.
患者的家庭是姑息治疗的常见场所。这意味着我们需要了解当前姑息治疗的理念，以及如何在护士、患者和患者家属之间的家庭护理遭遇（HCNE）中实现这些目标。关于这个主题的现有研究描述了消极和积极的观点。然而，在这种情况下，一直依赖于访谈和描述性方法。本研究旨在探讨姑息治疗中的计划 HCNE。设计是基于观察的多案例研究。分析包括描述性和解释性构建阶段。研究结果表明，计划的姑息 HCNE 可以被描述为一个共同创造的过程，通过在温暖和关怀的氛围中共享知识，为患者实现重要目标创造可能性，这是基于良好的关怀关系。然而，在一些 HCNE 中，共同创造并没有发生：患者或其家属的愿望和需求受到抑制或变得不可能，重要目标也没有实现。需要进一步研究以了解原因。本文提出的共同创造过程可以被视为姑息治疗理念的具体化，即采用以人为本的方法。
