Author Affiliations: College of Nursing, University of Saskatchewan, Saskatoon, Canada.
Cancer Nurs. 2013 Nov-Dec;36(6):436-44. doi: 10.1097/NCC.0b013e318277b57e.
Women diagnosed with ovarian cancer face a multitude of physical, psychological, and social issues. However, existing research has typically focused on those newly diagnosed with an initial occurrence or recurrence or women with advanced disease. As such, few studies have examined women's experiences across the illness trajectory and the impact of ovarian cancer on their everyday lives.
This research explores women's lived experiences of ovarian cancer and how they negotiate and make sense of illness-related issues.
Sixteen women participated in face-to-face interviews and e-mail follow-ups that were informed by hermeneutic and social phenomenological approaches.
Five broad themes emerged from data analysis related to changes in health status and the body, disruptions to everyday activities and relationships, uncertainty, and coping and finding meaning in illness. These themes reflect the structures of participants' experiences and constitute the essence of living with ovarian cancer, "cautious optimism."
This research contributes to our understanding of women's lived experiences of ovarian cancer across the illness trajectory; specifically, the findings indicate that embodiment and relationships were a central focus for participants as they sought to cope with myriad issues resulting from ovarian cancer.
Insight into women's ovarian cancer experiences can help nurses in their provision of care to this population. Furthermore, the findings can inform support interventions for affected women across the illness trajectory, as participants' experiences show that support needs often persist following treatment as women negotiate survivorship or recurrence.
被诊断患有卵巢癌的女性面临着许多身体、心理和社会问题。然而,现有的研究通常集中在那些首次诊断出患有初发性或复发性疾病或患有晚期疾病的女性。因此,很少有研究探讨女性在整个疾病轨迹中的经历以及卵巢癌对她们日常生活的影响。
本研究探讨了女性患卵巢癌的真实体验,以及她们如何应对和理解与疾病相关的问题。
16 名女性参与了面对面访谈和电子邮件随访,这些访谈和随访是基于解释学和社会现象学方法进行的。
数据分析中出现了五个与健康状况和身体变化、日常生活和人际关系中断、不确定性、应对和在疾病中寻找意义相关的主题。这些主题反映了参与者经历的结构,构成了患有卵巢癌的本质,即“谨慎的乐观”。
本研究增进了我们对女性在整个疾病轨迹中患卵巢癌的真实体验的理解;具体来说,研究结果表明,身体表现和人际关系是参与者应对由卵巢癌引起的众多问题的核心关注点。
深入了解女性的卵巢癌体验可以帮助护士为这一人群提供护理。此外,这些发现可以为整个疾病轨迹中的受影响女性提供支持干预,因为参与者的经历表明,随着女性在治疗后应对生存或复发,支持需求往往会持续存在。