Kanemura Hideaki, Sano Fumikazu, Mizorogi Sonoko, Tando Tomoko, Sugita Kanji, Aihara Masao
Department of Pediatrics, Faculty of Medicine, University of Yamanashi, Yamanashi, Japan.
Pediatr Int. 2013 Jun;55(3):315-9. doi: 10.1111/ped.12058.
Little is known about what parents think and how they act when their child experiences febrile seizure (FS). This study therefore surveyed parents of 78 children who had experienced a first FS regarding their thoughts and actions.
The questionnaire was divided into three parts: details of the child and their family; medical management of the child before reaching hospital; and parental thoughts and actions when the child experienced convulsions.
Parents without prior knowledge of FS showed a higher rate of thinking that FS were harmful than parents with prior knowledge (P < 0.03). Parents with prior knowledge were aware that their child was having an FS at a higher rate than parents without prior knowledge (P < 0.001). Moreover, parents without prior knowledge managed the convulsions less appropriately than parents with prior knowledge (P < 0.03).
Parental fears that the death of their child was imminent and the misperception of FS as a serious, life-threatening condition indicate a lack of knowledge regarding FS. Organizing parental support groups and effective educational intervention programs for parents should be given priority in the care of children with FS.
对于孩子发生热性惊厥（FS）时家长的想法及行为了解甚少。因此，本研究对78名首次发生FS的儿童的家长的想法及行为进行了调查。
问卷分为三个部分：孩子及其家庭的详细情况；到达医院前孩子的医疗处理；孩子惊厥发作时家长的想法及行为。
对FS无先验知识的家长认为FS有害的比例高于有先验知识的家长（P < 0.03）。有先验知识的家长比无先验知识的家长更能意识到孩子正在发生FS（P < 0.001）。此外，对FS无先验知识的家长对惊厥的处理不如有先验知识的家长恰当（P < 0.03）。
家长担心孩子即将死亡以及将FS误解为严重的、危及生命的状况，表明他们对FS缺乏了解。在照顾FS患儿时，应优先组织家长支持小组并为家长开展有效的教育干预项目。
