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父母关于孩子首次热性惊厥的想法和行为。

Parental thoughts and actions regarding their child's first febrile seizure.

作者信息

Kanemura Hideaki, Sano Fumikazu, Mizorogi Sonoko, Tando Tomoko, Sugita Kanji, Aihara Masao

机构信息

Department of Pediatrics, Faculty of Medicine, University of Yamanashi, Yamanashi, Japan.

出版信息

Pediatr Int. 2013 Jun;55(3):315-9. doi: 10.1111/ped.12058.

Abstract

BACKGROUND

Little is known about what parents think and how they act when their child experiences febrile seizure (FS). This study therefore surveyed parents of 78 children who had experienced a first FS regarding their thoughts and actions.

METHODS

The questionnaire was divided into three parts: details of the child and their family; medical management of the child before reaching hospital; and parental thoughts and actions when the child experienced convulsions.

RESULTS

Parents without prior knowledge of FS showed a higher rate of thinking that FS were harmful than parents with prior knowledge (P < 0.03). Parents with prior knowledge were aware that their child was having an FS at a higher rate than parents without prior knowledge (P < 0.001). Moreover, parents without prior knowledge managed the convulsions less appropriately than parents with prior knowledge (P < 0.03).

CONCLUSIONS

Parental fears that the death of their child was imminent and the misperception of FS as a serious, life-threatening condition indicate a lack of knowledge regarding FS. Organizing parental support groups and effective educational intervention programs for parents should be given priority in the care of children with FS.

摘要

背景

对于孩子发生热性惊厥(FS)时家长的想法及行为了解甚少。因此,本研究对78名首次发生FS的儿童的家长的想法及行为进行了调查。

方法

问卷分为三个部分:孩子及其家庭的详细情况;到达医院前孩子的医疗处理;孩子惊厥发作时家长的想法及行为。

结果

对FS无先验知识的家长认为FS有害的比例高于有先验知识的家长(P < 0.03)。有先验知识的家长比无先验知识的家长更能意识到孩子正在发生FS(P < 0.001)。此外,对FS无先验知识的家长对惊厥的处理不如有先验知识的家长恰当(P < 0.03)。

结论

家长担心孩子即将死亡以及将FS误解为严重的、危及生命的状况,表明他们对FS缺乏了解。在照顾FS患儿时,应优先组织家长支持小组并为家长开展有效的教育干预项目。

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