University Hospital for Children and Adolescents, Universitätsmedizin Rostock, Ernst-Heydemann-Straße 8, Rostock, 18057, Germany.
Clinical Pharmacy, Institute of Pharmacy, Medical Faculty, Leipzig University and Drug Safety Center, Leipzig University and University Hospital, Bruederstraße 32, Leipzig, 04103, Germany.
Eur J Pediatr. 2022 Apr;181(4):1487-1495. doi: 10.1007/s00431-021-04335-1. Epub 2021 Dec 7.
Febrile seizures (FS) in children are common, but little is known about parents' perceptions and knowledge of FS. We interviewed parents of children aged 6 months to 6 years affected by FS (FS group, 65 parents) or unaffected (control group, 54 parents). In the FS group, 32% said they knew their child had an FS when the first event occurred, and 89% described fear when the child had a seizure, with a median intensity of 10/10 (Q25/Q75: 9/10). Related to follow-up, 77% in the FS group (will) observe their child more carefully after the first seizure happened, and 63% (will) give antipyretics earlier at a median temperature of 38.2 °C (100.8 °F). In the FS group, 62% were unaware of FS before the first event (54% of control group did not know about FS thus far, n.s.). In the FS group, 20% would put a solid object in the mouth of a child having a seizure (control group, 39%, p = 0.030), and 92% would administer an available anti-seizure rescue medication (control group, 78%, p = 0.019). In the FS group, 71% feared that children with FS might suffocate (control group, 70%, n.s.).
Information about FS and their management should be more available to improve parents' coping and patient safety.
• Febrile seizures in children are common. • The prognosis of children suffering from febrile seizures is usually rather good.
• Over half of parents had not informed themselves about febrile seizures so far; and only 32% of parents realized their child had a febrile seizure when it occurred. • Most parents described own fear with a median intensity of 10/10; and 63% (will) give antipyretics earlier at a median temperature of 38.2 °C (100.8 °F).
儿童热性惊厥（FS）很常见，但家长对 FS 的认知和了解甚少。我们对 6 个月至 6 岁患有 FS（FS 组，65 位家长）或未患有 FS（对照组，54 位家长）的患儿家长进行了访谈。在 FS 组中，32%的家长表示，他们在首次发作时就知道自己的孩子有 FS，89%的家长在孩子发作时感到恐惧，中位数强度为 10/10（四分位距 25/75：9/10）。与随访相关，FS 组中 77%（将会）在首次发作后更仔细地观察孩子，63%（将会）在中位数体温为 38.2°C（100.8°F）时更早地使用退烧药。在 FS 组中，62%的家长在首次发作前不知道 FS（对照组中，54%迄今不知道 FS，无统计学差异）。在 FS 组中，20%的家长（对照组中 39%，p=0.030）会在孩子发作时将固体物体放入口中，92%的家长（对照组中 78%，p=0.019）会使用可用的抗惊厥急救药物。在 FS 组中，71%的家长担心患有 FS 的孩子可能会窒息（对照组中，70%，无统计学差异）。
应提供更多关于 FS 及其管理的信息，以改善家长的应对能力和患者安全。
•儿童热性惊厥很常见。•患有热性惊厥的儿童的预后通常较好。
•超过一半的家长迄今尚未了解热性惊厥；只有 32%的家长在发作时意识到自己的孩子患有热性惊厥。•大多数家长描述自己的恐惧程度为中位数强度 10/10；并且 63%（将会）在中位数体温为 38.2°C（100.8°F）时更早地使用退烧药。
