适应照顾者角色：应对与支持的重要性。
Adjusting to the caregiving role: the importance of coping and support.
作者信息
Epiphaniou Eleni, Hamilton David, Bridger Susanne, Robinson Vicky, Rob George, Beynon Teresa, Higginson Irene, Harding Richard
机构信息
Queen Mary University of London, Barts & The London School of Medicine and Dentistry, Centre for Primary Care and Public Health, Blizard Institute, Yvonne Carter Building, 58 Turner Street, London, UK.
出版信息
Int J Palliat Nurs. 2012 Nov;18(11):541-5. doi: 10.12968/ijpn.2012.18.11.541.
BACKGROUND
Although informal end-of-life care is associated with significant physical and psychological morbidity for caregivers, few interventions have been developed to meet these needs. This study aimed to identify existing coping and support mechanisms among informal cancer caregivers in order to inform intervention development.
METHOD
One-to-one semi-structured qualitative interviews were undertaken with 20 informal cancer caregivers of home palliative care patients.
RESULTS
Caregivers' existing coping strategies included distraction, mental stimulation, emotional release, looking for the positive aspects of caregiving, and disengaging from stressful thoughts. The majority of the participants described the importance of support and understanding form family and friends.
CONCLUSIONS
The data suggests that feasible and acceptable interventions will be those that are targeted to caregivers to assist them in optimising existing coping strategies and support from family and friends.
背景
尽管非正式临终关怀会给照护者带来显著的身心问题，但针对这些需求所开发的干预措施却很少。本研究旨在确定非正式癌症照护者现有的应对和支持机制，以为干预措施的开发提供参考。
方法
对20名居家姑息治疗患者的非正式癌症照护者进行了一对一的半结构化定性访谈。
结果
照护者现有的应对策略包括转移注意力、精神刺激、情绪释放、寻找照护的积极方面以及摆脱压力性思维。大多数参与者描述了家人和朋友给予支持和理解的重要性。
结论
数据表明，可行且可接受的干预措施将是那些针对照护者的措施，以帮助他们优化现有的应对策略以及家人和朋友提供的支持。
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