Aoun Samar, Deas Kathleen, Toye Chris, Ewing Gail, Grande Gunn, Stajduhar Kelli
School of Nursing and Midwifery, Curtin University, Perth, WA, Australia
School of Nursing and Midwifery, Curtin University, Perth, WA, Australia.
Palliat Med. 2015 Jun;29(6):508-17. doi: 10.1177/0269216314566061. Epub 2015 Feb 2.
The Carer Support Needs Assessment Tool encompasses the physical, psychological, social, practical, financial, and spiritual support needs that government policies in many countries emphasize should be assessed and addressed for family caregivers during end-of-life care.
To describe the experience of family caregivers of terminally ill people of the Carer Support Needs Assessment Tool intervention in home-based palliative care.
This study was conducted during 2012-2014 in Silver Chain Hospice Care Service in Western Australia. This article reports on one part of a three-part evaluation of a stepped wedge cluster trial. All 233 family caregivers receiving the Carer Support Needs Assessment Tool intervention provided feedback on their experiences via brief end-of-trial semi-structured telephone interviews. Data were subjected to a thematic analysis.
The overwhelming majority reported finding the Carer Support Needs Assessment Tool assessment process straightforward and easy. Four key themes were identified: (1) the practicality and usefulness of the systematic assessment; (2) emotional responses to caregiver reflection; (3) validation, reassurance, and empowerment; and (4) accessing support and how this was experienced.
Family caregivers appreciated the value of the Carer Support Needs Assessment Tool intervention in engaging them in conversations about their needs, priorities, and solutions. The Carer Support Needs Assessment Tool presented a simple, yet potentially effective intervention to help palliative care providers systematically assess and address family caregivers' needs. The Carer Support Needs Assessment Tool provided a formal structure to facilitate discussions with family caregivers to enable needs to be addressed. Such discussions can also inform an evidence base for the ongoing development of services for family caregivers, ensuring that new or improved services are designed to meet the explicit needs of family caregivers.
照顾者支持需求评估工具涵盖了身体、心理、社会、实际、经济和精神支持需求，许多国家的政府政策强调，在临终关怀期间，应对家庭照顾者的这些需求进行评估和处理。
描述在家居姑息治疗中，使用照顾者支持需求评估工具对绝症患者家庭照顾者进行干预的体验。
本研究于2012年至2014年在西澳大利亚的银链临终关怀服务机构开展。本文报告了一项阶梯式楔形整群试验三部分评估中的一部分。所有233名接受照顾者支持需求评估工具干预的家庭照顾者，通过简短的试验结束后半结构化电话访谈，反馈了他们的体验。数据进行了主题分析。
绝大多数人报告称，照顾者支持需求评估工具的评估过程直接且简单。确定了四个关键主题：（1）系统评估的实用性和有用性；（2）对照顾者反思的情绪反应；（3）确认、安心和赋权；（4）获得支持以及对此的体验。
家庭照顾者认可照顾者支持需求评估工具干预在促使他们参与关于自身需求、优先事项和解决方案的对话方面的价值。照顾者支持需求评估工具提供了一种简单但可能有效的干预措施，以帮助姑息治疗提供者系统地评估和满足家庭照顾者的需求。照顾者支持需求评估工具提供了一个正式的框架，便于与家庭照顾者进行讨论，以满足他们的需求。此类讨论还可为持续发展家庭照顾者服务的证据基础提供信息，确保新的或改进的服务旨在满足家庭照顾者的明确需求。
