Sandwell and West Birmingham Hospitals, NHS Trust, West Midlands, UK.
Phys Occup Ther Pediatr. 2013 Aug;33(3):285-99. doi: 10.3109/01942638.2013.773954. Epub 2013 Mar 11.
The purpose of this study was to explore how parents of children with cerebral palsy, attending mainstream primary schools, perceive the relevance of, and adherence with, exercise programs.
A qualitative research with constructivist approach was used. Semi-structured interviews were conducted with parents. Open-ended questions related to their role in supporting the child's recommended exercise program. A thematic analysis approach was used to generate three main themes.
The themes were: exercise program management and delivery, perceived feelings and personal responses, and external impact and support.
Exercise programs, to be implemented by families at home and support workers in school, are often characterized as prescriptive and focused on the child's impairment. These need to be integrated into a more holistic approach that considers family and child preferences. If this is to be achieved, parents' perspectives must play a legitimate part in evaluating the effectiveness of practice.
本研究旨在探讨在主流小学就读的脑瘫儿童的家长如何看待和遵守运动计划的相关性。
采用具有建构主义方法的定性研究。对家长进行半结构化访谈。开放式问题涉及他们在支持孩子推荐的运动计划方面的作用。采用主题分析方法生成三个主要主题。
这些主题是：运动计划的管理和实施、感知的感受和个人反应以及外部影响和支持。
运动计划由家庭在家庭中实施，由学校的支持人员实施，通常被认为是规定性的，侧重于孩子的损伤。这些需要融入到更全面的方法中，该方法要考虑到家庭和孩子的偏好。如果要实现这一目标，就必须让家长的观点在评估实践效果方面发挥合法作用。
