Sahebalzamani Mohammad, Zamiri Maryam, Rashvand Farnoosh
Assistant Professor, Tehran Medical Branch, Islamic Azad University, Tehran, Iran.
Iran J Nurs Midwifery Res. 2012 Jan;17(1):7-11.
Multiple sclerosis (MS) is a chronic and progressive disease of the central nervous system with debilitating symptoms and complications. Therefore, education and appropriate interventions, including self-care education, are necessary to increase the quality of life in these patients. The purpose of this study was to determine the influence of self-care education on quality of life in MS patients affiliated to Iranian MS Association.
This quasi-experimental study assessed a single group of MS patients before and after training. Totally, 50 MS patients were selected non-randomly from the patients referring to Iranian MS Association. A two-part questionnaire was used to collect data. The first part included demographic information and the second part consisted of a quality of life questionnaire (MSQOL-54) including 54 items in 3 sections and 14 subgroups. The scores ranges from zero to a hundred in each subgroup. The reliability of the questionnaire has been confirmed (Cronbach's alpha = 0.96). The questionnaires were filled out by the patients before training. After at least six 50-minute training sessions during three months, the same questionnaire was again completed by the participants. Statistical analyses, including absolute and relative frequency tables and mean and standard deviation for descriptive analysis, and t-test and Pearson correlation for descriptive analysis, were performed by SPSS.
The mean values of quality of life in physical health, pain, fatigue, health conception, changes in health status, sexual activities, as well as overall quality of life scores differed significantly after training. Moreover, except for cognitive activity, there were significant differences in values of mental health before and after training.
Designing and applying the self-care programs based on the educational needs of MS patients has a positive effect on physical and psychological aspects of their quality of life.
多发性硬化症（MS）是一种中枢神经系统的慢性进行性疾病，伴有使人衰弱的症状和并发症。因此，开展教育及采取适当干预措施，包括自我护理教育，对于提高这些患者的生活质量很有必要。本研究的目的是确定自我护理教育对隶属于伊朗多发性硬化症协会的MS患者生活质量的影响。
这项准实验研究评估了一组MS患者在培训前后的情况。总共从转诊至伊朗多发性硬化症协会的患者中非随机选取了50名MS患者。使用一份两部分的问卷来收集数据。第一部分包括人口统计学信息，第二部分由一份生活质量问卷（MSQOL - 54）组成，该问卷包括3个部分的54个项目以及14个子组。每个子组的分数范围从零到一百。该问卷的信度已得到证实（克朗巴哈系数 = 0.96）。问卷由患者在培训前填写。在三个月内进行至少六次每次50分钟的培训课程后，参与者再次填写相同的问卷。使用SPSS进行统计分析，包括用于描述性分析的绝对和相对频率表以及均值和标准差，以及用于描述性分析的t检验和皮尔逊相关性分析。
培训后，身体健康、疼痛、疲劳、健康观念、健康状况变化、性活动以及总体生活质量评分等方面的生活质量均值有显著差异。此外，除认知活动外，培训前后心理健康值也存在显著差异。
根据MS患者的教育需求设计并应用自我护理项目，对其生活质量的生理和心理方面具有积极影响。
