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儿科临终关怀:伦理、争议与优化死亡质量。

End-of-life care in pediatrics: ethics, controversies, and optimizing the quality of death.

机构信息

Division of Critical Care, Department of Pediatrics, University of Cincinnati, Cincinnati Children's Hospital and Medical Center, Cincinnati, OH 45229, USA.

出版信息

Pediatr Clin North Am. 2013 Jun;60(3):725-39. doi: 10.1016/j.pcl.2013.02.009. Epub 2013 Mar 7.

DOI:10.1016/j.pcl.2013.02.009
PMID:23639665
Abstract

Hospitalized children constitute most annual pediatric deaths in the United States. The details of "how-to" provide end-of-life (EOL) care are not consistently taught to staff and therefore the actual delivery of EOL care is often inconsistent and invariably negatively associated with the long-term mental health of both the patient's family and care providers. This review describes the pertinent aspects of end-of-life care in pediatrics. Finally, a framework to optimize the quality of death is described, which underscores the importance of synchrony between the care team and the family at the end of a child's life.

摘要

在美国,住院儿童构成了儿科年度死亡人数的大部分。“如何做”提供临终关怀的细节并未一致教授给工作人员,因此临终关怀的实际提供往往不一致,并且总是与患者家庭和护理人员的长期心理健康负相关。本综述描述了儿科临终关怀的相关方面。最后,描述了一个优化死亡质量的框架,该框架强调了在儿童生命结束时护理团队和家庭之间同步的重要性。

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