Aldenkamp A P, Suurmeijer T P, Bijvoet M E, Heisen T W
Instituut voor Epilepsiebestrijding, Heemstede, The Netherlands.
Fam Pract. 1990 Jun;7(2):110-5. doi: 10.1093/fampra/7.2.110.
This study examined the emotional and social reactions of children to epilepsy in a parent. Clinical impression and previous research suggests that these children have special psychosocial problems. Fifteen families, randomly selected from outpatient clinics, were evaluated using an open interview, standardized inventories and a personality test. The results showed that the investigated families had acceptable levels of communication about the epilepsy. The majority of children were informed about the parent's epileptic condition before they witnessed a seizure. An overall judgement of social functioning showed that the children had sufficient social adaptation. Analysis of the personality inventories revealed no signs of serious personality disorders in the children. Closer inquiry into the results showed that, despite the availability of information, misconceptions about the epilepsy and associated fears existed. In particular, extreme denial of somatic complaints was observed in a subgroup. Associated problems in the area of social functioning concerned a defensive attitude towards inviting friends home, increased feeling of responsibility for the parents and academic problems at school.
本研究调查了儿童对父母患癫痫症的情绪和社会反应。临床印象和先前的研究表明,这些儿童存在特殊的心理社会问题。从门诊诊所随机选取了15个家庭,采用开放式访谈、标准化量表和人格测试进行评估。结果显示,被调查家庭在关于癫痫症的沟通方面处于可接受水平。大多数儿童在目睹癫痫发作之前就已被告知父母的癫痫病情。对社会功能的总体判断表明,这些儿童具有足够的社会适应能力。对人格量表的分析显示,儿童没有严重人格障碍的迹象。对结果的进一步探究表明,尽管有信息可用,但对癫痫症仍存在误解和相关恐惧。特别是,在一个亚组中观察到对躯体不适的极端否认。社会功能方面的相关问题包括对邀请朋友回家持防御态度、对父母的责任感增强以及在学校出现学业问题。