Chair of Complementary and Integrative Medicine, University of Duisburg-Essen, Essen, Germany.
Clin Exp Rheumatol. 2013 Nov-Dec;31(6 Suppl 79):S34-40. Epub 2013 May 27.
This study aimed to determine patient-related predictors of treatment satisfaction in fibromyalgia syndrome (FMS)-patients.
In a cross-sectional survey, participants with self-reported diagnosis of FMS were recruited by FMS-self help organisations and clinical institutions. The patients answered demographic and medical questionnaires, the Fibromyalgia Survey Questionnaire (FSQ) including the Somatic Severity Score (SSS) and Widespread Pain Index (WPI), the Patient Health Questionnaire (PHQ-4), and rated their treatment satisfaction on an 11-point Likert scale. The impact of patient-related variables (age, gender, partnership, educational level, time since onset of pain, time since FMS-diagnosis, health status since diagnosis, membership in FMS self-help organisations, polysymptomatic distress, anxiety and depression) and types of treatment on treatment satisfaction were tested by a multiple regression analysis.
The study sample (n=1651 patients) was composed mainly of middle-aged women with a long disease history, and 83.9% fulfilled the American College of Rheumatology diagnostic criteria of 2010. There was considerate variety regarding treatment satisfaction in FMS-patients, 14.8% reported no, 31.7% low, 40.8% moderate and 12.7% high satisfaction. Higher satisfaction was predicted by longer time since FMS diagnosis (p=0.03), improved health status since FMS-diagnosis (p<0.0001), lower depression score (p=0.005) and higher amount of active therapies (p<0.0001). Other sociodemographic (age, gender etc.) and disease-related variables (polysymptomatic distress intensity) did not influence treatment satisfaction.
The results of the study illustrate the influence of patient-related factors on treatment satisfaction. Treating comorbid depression and enabling patients to actively cope with the disease might prove successful in improving treatment satisfaction of FMS-patients.
本研究旨在确定纤维肌痛综合征（FMS）患者治疗满意度的患者相关预测因素。
在一项横断面调查中，通过 FMS 自助组织和临床机构招募了自我报告诊断为 FMS 的参与者。患者回答了人口统计学和医学问卷、纤维肌痛调查问卷（FSQ），包括躯体严重程度评分（SSS）和广泛疼痛指数（WPI）、患者健康问卷（PHQ-4），并在 11 点 Likert 量表上对治疗满意度进行评分。通过多元回归分析测试了患者相关变量（年龄、性别、伴侣关系、教育程度、疼痛发病时间、FMS 诊断时间、诊断后健康状况、FMS 自助组织成员身份、多症状困扰、焦虑和抑郁）和治疗类型对治疗满意度的影响。
研究样本（n=1651 名患者）主要由中年女性组成，病史较长，83.9%符合美国风湿病学会 2010 年的诊断标准。FMS 患者的治疗满意度存在相当大的差异，14.8%表示不满意，31.7%表示不满意低，40.8%表示中等，12.7%表示高度满意。FMS 诊断后时间较长（p=0.03）、FMS 诊断后健康状况改善（p<0.0001）、抑郁评分较低（p=0.005）和积极治疗量较高（p<0.0001）预测满意度较高。其他社会人口统计学（年龄、性别等）和疾病相关变量（多症状困扰强度）对治疗满意度没有影响。
研究结果说明了患者相关因素对治疗满意度的影响。治疗共病性抑郁并使患者能够积极应对疾病可能会成功提高 FMS 患者的治疗满意度。
