LeBlanc Thomas W, Shulman Lawrence N, Yu Peter P, Hirsch Bradford R, Abernethy Amy P
From the Division of Medical Oncology, Department of Medicine, Duke University Medical Center, Durham, NC; Duke Cancer Care Research Program, Duke Cancer Institute, Durham, NC; Center for Learning Health Care, Duke Clinical Research Institute, Duke University, Durham, NC; Center for Global Cancer Medicine, Dana-Farber Cancer Institute, Boston, MA; Breast Oncology Program, Dana-Farber Cancer Institute, Boston, MA; Palo Alto Medical Foundation, Mountain View, CA.
Am Soc Clin Oncol Educ Book. 2013:136-42. doi: 10.14694/EdBook_AM.2013.33.136.
Health information technology (HIT) is ever-increasing in complexity and has incrementally become a fundamental part of our everyday clinical lives. As HIT becomes more complex and commonplace, so do the questions it raises about stewardship and usage of data, along with the ethics of these applications. With the development of rapid-learning systems, such as ASCO's CancerLinQ, careful thought about the ethics and applications of these technologies is necessary. This article uses the principles-based framework of modern bioethics to examine evolving ethical issues that arise in the context of HIT and also discusses HIT's application in reducing cancer care disparities in the developing world. We recognize that this topic is quite broad, so here we provide an overview of the issues, rather than any definitive conclusions about a particular "correct path." Our hope is to stimulate discussion about this important topic, which will increasingly need to be addressed in the oncology community.
健康信息技术（HIT）的复杂性在不断增加，并逐渐成为我们日常临床生活的基本组成部分。随着HIT变得越来越复杂和普遍，它所引发的关于数据管理与使用以及这些应用的伦理问题也日益增多。随着诸如美国临床肿瘤学会（ASCO）的CancerLinQ等快速学习系统的发展，对这些技术的伦理和应用进行审慎思考是必要的。本文运用现代生物伦理学的基于原则的框架，审视在HIT背景下出现的不断演变的伦理问题，并讨论HIT在减少发展中世界癌症护理差距方面的应用。我们认识到这个话题相当广泛，所以在此我们提供对这些问题的概述，而非关于特定“正确路径”的任何确定性结论。我们希望激发关于这个重要话题的讨论，而这在肿瘤学界将越来越需要得到解决。
