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重症肌无力

Myasthenia gravis.

作者信息

Koopman W J

出版信息

Axone. 1990 Jun;11(4):92-3.

PMID:2375933
Abstract

These three case histories exemplify current treatment strategies and prognosis in a previously chronic, severe and sometimes life-threatening disease. The nurse's challenge in working with and caring for these individuals include: patient education-concerning disease process, medications and cholinergic vs myasthenic crisis. Long term emotional support of both the patient and family are important in a disease which may take years before remission occurs. Patient support groups and literature may often be of benefit. The hospital stay for a myasthenic may be relatively short (e.g. during thymectomy only). The home health care team, family physician, and outpatient neurological team rely on the patient and his family to have a solid knowledge base and continual telephone contact in order to maintain optimal care. Immunosuppression and plasmapheresis may well be a contributing factor to improved prognosis and cure in a previously "grave" disease.

摘要

这三个病例史例证了一种先前为慢性、严重且有时危及生命的疾病当前的治疗策略和预后情况。护士在护理这些患者时面临的挑战包括:对患者进行有关疾病过程、药物以及胆碱能危象与肌无力危象方面的教育。在这种可能需要数年才能缓解的疾病中,对患者及其家庭提供长期的情感支持很重要。患者支持小组和相关文献通常可能会有所帮助。肌无力患者的住院时间可能相对较短(例如仅在胸腺切除术期间)。家庭医疗团队、家庭医生和门诊神经科团队依赖患者及其家人具备扎实的知识基础并保持持续的电话联系,以维持最佳护理。免疫抑制和血浆置换很可能是改善一种先前“严重”疾病的预后及实现治愈的一个促成因素。

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