Bradford Teaching Hospitals NHS Foundation Trust and University of Leeds, UK.
Clin Rehabil. 2013 Nov;27(11):1020-8. doi: 10.1177/0269215513487082. Epub 2013 Jun 20.
To evaluate the acceptability, test-retest reliability and validity of the Longer-term Unmet Needs after Stroke monitoring tool.
A questionnaire pack was posted to stroke survivors living at home three or six months after stroke. A second pack was sent two weeks after receipt of the completed first pack.
Stroke survivors living at home across England.
Stroke survivors were recruited from 40 hospitals across England, in two phases. The first with an optimal cohort of patients, the second to capture a broader post-stroke population, including those with communication and/or cognitive difficulties. Patients were excluded if they required palliative care or if permanent discharge to a nursing or residential home was planned.
The questionnaire pack included the Longer-term Unmet Needs after Stroke tool, General Health Questionnaire-12, Frenchay Activities Index, and Short Form-12.
Interim analysis of phase 1 data (n = 350) indicated that the tool was sufficiently robust to progress to phase 2 (n = 500). Results are reported on the combined study population. Of 850 patients recruited, 199 (23%) had communication and/or cognitive difficulties. The median age was 73 years (range 28-98). Questionnaire pack return rate was 69%. For the new tool, there was 3.5% missing data and test-retest reliability was moderate to good (percentage item agreement 78-99%, kappa statistic 0.45-0.67). Identification of an unmet need was consistently associated with poorer outcomes on concurrent measures.
The Longer-term Unmet Needs after Stroke tool is acceptable, reliable, can be self-completed, and used to identify longer-term unmet needs after stroke.
评估卒中后长期未满足需求监测工具的可接受性、重测信度和效度。
将问卷包寄给卒中后在家居住的幸存者，在卒中后 3 或 6 个月时寄出。收到第一份问卷包后两周寄出第二份。
英格兰各地在家居住的卒中幸存者。
在英格兰的 40 家医院分两阶段招募卒中幸存者。第一阶段是最佳队列患者，第二阶段则包括沟通和/或认知困难的更广泛的卒中后人群。如果需要姑息治疗或计划永久转至护理院或养老院，则排除患者。
问卷包包括卒中后长期未满足需求工具、一般健康问卷-12、Frenchay 活动指数和简明健康状况调查问卷 12。
第一阶段数据的中期分析（n=350）表明，该工具足够稳健，可以进入第二阶段（n=500）。研究结果报告了联合研究人群的数据。在招募的 850 名患者中，有 199 名（23%）存在沟通和/或认知困难。中位年龄为 73 岁（范围 28-98 岁）。问卷包的回复率为 69%。对于新工具，有 3.5%的数据缺失，重测信度为中等至良好（百分比项目一致性为 78%-99%，kappa 统计量为 0.45-0.67）。识别未满足的需求与同期测量的较差结果始终相关。
卒中后长期未满足需求工具具有可接受性、可靠性，可自行完成，可用于识别卒中后长期未满足的需求。
