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我们是否未能向有发生长时间惊厥性癫痫风险的在校儿童提供足够的急救药物?

Are we failing to provide adequate rescue medication to children at risk of prolonged convulsive seizures in schools?

机构信息

UCL Institute of Child Health, Great Ormond Street Hospital NHS Foundation Trust, , London, UK.

出版信息

Arch Dis Child. 2013 Oct;98(10):777-80. doi: 10.1136/archdischild-2013-304089. Epub 2013 Jul 30.

Abstract

OBJECTIVE

This paper explores the issues that arise from the discussion of administering rescue medication to children who experience prolonged convulsive seizures in mainstream schools in the UK.

SITUATION ANALYSIS

Current guidelines recommend immediate treatment of children with such seizures (defined as seizures lasting more than 5 min) to prevent progression to status epilepticus and neurological morbidity. As children are unconscious during prolonged convulsive seizures, whether or not they receive their treatment in time depends on the presence of a teacher or other member of staff trained and able to administer rescue medication. However, it is thought that the situation varies between schools and depends mainly on the goodwill and resources available locally.

RECOMMENDATIONS

A more systematic response is needed to ensure that children receive rescue medication regardless of where their seizure occurs. Possible ways forward include: greater use of training resources for schools available from epilepsy voluntary sector organisations; consistent, practical information to schools; transparent guidance outlining a clear care pathway from the hospital to the school; and implementation and adherence to each child's individual healthcare plan.

IMPLICATIONS

Children requiring emergency treatment for prolonged convulsive seizures during school hours test the goals of integrated, person-centred care as well as joined-up working to which the National Health Service (NHS) aspires. As changes to the NHS come into play and local services become reconfigured, every effort should be made to take account of the particular needs of this vulnerable group of children within broader efforts to improve the quality of paediatric epilepsy services overall.

摘要

目的

本文探讨了在英国主流学校中,为经历长时间惊厥性癫痫发作的儿童使用急救药物所引发的问题。

情境分析

目前的指南建议对这类癫痫发作(定义为发作持续超过 5 分钟)的儿童立即进行治疗,以防止发展为癫痫持续状态和神经功能障碍。由于儿童在长时间惊厥性癫痫发作期间处于无意识状态,他们是否能及时得到治疗取决于是否有受过培训且有能力使用急救药物的教师或其他工作人员在场。然而,据认为,各学校之间情况有所不同,主要取决于当地的善意和资源。

建议

需要采取更系统的应对措施,以确保无论儿童的癫痫发作发生在哪里,都能得到急救药物。可能的前进方向包括:更多地利用癫痫志愿组织提供的学校培训资源;为学校提供一致、实用的信息;通过透明的指导,从医院到学校制定明确的护理路径;实施并遵守每个孩子的个人医疗保健计划。

影响

在学校上课时间内,需要紧急治疗长时间惊厥性癫痫发作的儿童,这对综合的、以患者为中心的护理目标以及国民保健服务(NHS)所追求的协同工作提出了挑战。随着国民保健制度的改革和地方服务的重新配置,应尽一切努力在更广泛地改善儿科癫痫服务质量的努力中,考虑到这一脆弱儿童群体的特殊需求。

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