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一个帮助慢性肾病患者应对饮食限制的饮食管理信息与交流系统。

A diet management information and communication system to help chronic kidney patients cope with diet restrictions.

作者信息

Heiden Sisse, Buus Amanda A, Jensen Morten H, Hejlesen Ole K

机构信息

Department of Health Science and Technology, University of Aalborg, Aalborg, Denmark.

出版信息

Stud Health Technol Inform. 2013;192:543-7.

Abstract

Hyperphosphatemia, hyperkalemia, and fluid overload are frequently observed and pose major physiological concerns in chronic kidney patients. The problems are closely related to inadequate diet and phosphate binder intake, which are considerable challenges for many patients. The objective of this study was to develop and test an educational decision support system to help kidney patients cope with diet restrictions and phosphate binder dosage. A prototype was designed including three main functions: 1) information and education, 2) food analyser database and diet registration, and 3) model-based decision support to phosphate binder dosage. The functions and the usability of the prototype were evaluated through user testing and qualitative interviews including five kidney patients. The decision support function was modified and tested using experimental data. In conclusion, the system was evaluated to be a relevant, and potentially beneficial tool to cope with kidney diet restrictions. Further data are necessary to validate the correct phosphate binder dosage and assess the ability of the system to decrease the incidence of fluid and electrolyte disorders in kidney patients.

摘要

高磷血症、高钾血症和液体超负荷在慢性肾病患者中经常出现,并构成主要的生理问题。这些问题与饮食不足和磷结合剂摄入密切相关,这对许多患者来说是相当大的挑战。本研究的目的是开发并测试一个教育决策支持系统,以帮助肾病患者应对饮食限制和磷结合剂剂量问题。设计了一个原型,包括三个主要功能:1)信息与教育,2)食物分析器数据库和饮食记录,以及3)基于模型的磷结合剂剂量决策支持。通过包括五名肾病患者的用户测试和定性访谈,对原型的功能和可用性进行了评估。使用实验数据对决策支持功能进行了修改和测试。总之,该系统被评估为应对肾病饮食限制的一个相关且可能有益的工具。需要进一步的数据来验证正确的磷结合剂剂量,并评估该系统降低肾病患者液体和电解质紊乱发生率的能力。

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